Answer Summary

Members shared their experiences with small fiber neuropathy, describing symptoms that include burning sensations in feet, legs, hands, and... Read more

Members shared their experiences with small fiber neuropathy, describing symptoms that include burning sensations in feet, legs, hands, and sometimes the face, with many noting the condition often accompanies fibromyalgia. Several members discussed the diagnostic process, including skin biopsies that can confirm or rule out SFN, though some neurologists suggest skipping testing since treatment remains the same regardless, while others emphasized the value of knowing for certain. A recurring theme was frustration over limited treatment options and questions about stopping progression, with members expressing both the desire for definitive answers and weariness from repeated doctor visits that often end with fibromyalgia as the catch-all diagnosis.