Moms - How Do You Handle Caring For Your Kids With The Pain And Fatigue? | MyFibroTeam

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Moms - How Do You Handle Caring For Your Kids With The Pain And Fatigue?
A MyFibroTeam Member asked a question 💭

I have a 2.5 year old and a 2 month old. I really struggle having the energy to do everything. I feel like I live on the couch. What are some things that help you get through the tough days?

posted August 5, 2019
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A MyFibroTeam Member

I have a four year old Very Active son, and I have mommy time activities he can draw a piece of paper out of a jar to see which activity. I have all of them be what I know I can do most of the time. If he wants to do something I’m not up to I bargain one activity for another or we do this when I’m feeling better. Here are some of the activities: movie time, story time, magazine time, craft time, look and find books, coloring together, outside time ( I go out and watch while sitting on something), cuddle time, etc...

posted October 10, 2019
A MyFibroTeam Member

I'm the same. I have a 3 year old and 1 year old. They are so full of energy and constantly fighting. My son is now at an age where he understands if I tell him mummys back is really hurting today he is gentler and that's why I can't play with him as much. But I often let him just play all over me Eventhough most of it hurts. At one point I pretty much stayed on the floor constantly just so I could interact with them more. But I do make sure to always do bedtime as it's our special time and I tell them a million times a day I love them. And on good days I try to get out even if it's just to Costa to get some food or to ASDA with a cafe so we can have lunch out.

posted August 7, 2019
A MyFibroTeam Member

Sorry to say, I had the same problems when my children were younger. I even often times had to pull off the rode when I was driving and pretend to have something I wanted to show my kids.
The sad part is that now that my children are grown, many of their memories was of "mom laying on the couch". Try your best to engage your tiredness as games so that you don't get the double whammy of hearing about your life through their eyes. Make tents and play "Fort" or read books. Anything that allows you to lay down as part of the game.

They now understand why mommy was always laying down, but it makes me feel bad.

posted August 6, 2019
A MyFibroTeam Member

I have the same issue. I feel like I live on my bed, my youngest is 2 1/2 so we have playtime in his room while i lounge on his bed(twin bed). I can't breath well out doors so it's typical quick in and out play time.
I have multiple monthly appts which are a challenge to do alone. Don't beat yourself up taking it moment by moment is okay.

posted August 5, 2019
A MyFibroTeam Member

I really feel for you with very young kids. Mine are 5 and 7 and luckily at an age now where they enjoy to play together (or on the Xbox!). But it breaks my heart when they ask me to play with them and I’ve not got the energy or in too much pain. I honestly don’t know how I would have coped if I’d had fibro when they were babies/toddlers. Most days it’s a struggle now and I have mum guilt every single day. I’m always thinking to myself I don’t want them looking back when they’re older and just remembering mummy being boring or saying no 😭😭 x

posted July 7, 2021

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