How exciting @A MyFibroTeam Member!! I wish you the BEST response to it if you decide to try!! And I'm thrilled that you'll post your results. One dr online said in his experience that the best fibro candidates are the ones that used high doses of opioids and STILL had pain but that could just be within his pool of patients. I never seem to fit a "profile" so that wouldn't stop me from experimenting.

But how is your doctor going to advocate getting it since it's off label use is for fibro and I read it can only be prescribed for dementia? I wonder if "memory impairment and/or cognitive decline" will suffice. Do you know?

Last, what will the dose and cost be and when will you decide? 🌝🤗💛💫

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A MyFibro...

Here is something else I came across in my research
The generic vaccine is BCG, a generic drug, which is used globally to prevent tuberculosis.
Global research concerning the BCG vaccine, such as the research work of Dr. Hazel Dockrell at the London School of Hygiene and Tropical Medicine has demonstrated that vaccinations with BCG can activate immune markers which are known to be the same reciprocal defects within the immune systems of people with fibromyalgia. In my research,

I also believe that the medication for cerebral palsy could also be very helpful, I asked my Dr if he thought the cerebral palsy medication would help, and he sort of shrugged it off, and that is where I am today none the wiser just wish Dr would listen to us sometimes, then we might find a cure, Hugs & Kisses to all FM sufferers love Jacque OXOX

I have been fortunate enough to try it, several years ago, when it was new to fibro treatment. It was effective for my fibro but I had the unusual side effect of hallucinations. They weren’t an immediate onset. I also had hallucinations as a side effect of pramipexole, an off label use of a Parkinson’s med, for restless legs. I may be sensitive to medications that act on the brain this way, I don’t know.

I sent all the information and links I could find to my doctor (he’s awesome) and he is interested in giving a try. He is always open to research and alternative therapies. I told him I would do some more research and think about giving it a try. If I do I will post the results. I’m thinking if it could just help somewhat with the symptoms of pain, fatigue, and brain fog, or even one of those symptoms it’s worth a try.

I have been on Metformin for the last 5yrs for DM type2. It has kept my BS fairly even at 150 I am also taking Victosa to keep my A1c low. Between these 2 drugs I am doing quite well. As to weither it has lowered my pain threshold I am not sure. I am also on Cymbalta 90 mg. for the fibro and the depression that goes with it. I am of the age that it is hard to tell if it is fibro or arthritis pain. I don't feel the pain is as severe as it was years ago, but the exhaustion and sleep changes are definately there.