Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Share Something New You Have Learned About Yourself Since Being Diagnosed With Fibromyalgia.

A MyFibroTeam Member asked a question 💭
Smyrna, DE

I have discovered that energy management is key to being able to live with Fibro. I read so much more and have learned many new things. I try hard to give back by sharing what I’ve learned so other can benefit.

May 25, 2019
 • 
Reactions

Answer Summary

Members shared deeply personal discoveries about living with fibromyalgia, with energy management, pacing tasks, and strategic rest emerging... Read more

Members shared deeply personal discoveries about living with fibromyalgia, with energy management, pacing tasks, and strategic rest emerging as essential survival tools that many had to learn through hard experience. Several members described practical strategies that have helped them cope, including gentle stretching and bed exercises, swimming and walking for low-impact movement, medications like gabapentin and amitriptyline, supplements such as glucosamine and CBD oil, and dividing household tasks into small manageable chunks to avoid exhaustion and flare-ups. A recurring theme was the profound mind-body connection between emotional states and physical symptoms, the importance of self-compassion and gratitude when facing a lonely and unpredictable illness, and the determination to show up for life even when forcing yourself out of bed feels like the hardest thing you'll do that day.

A MyFibroTeam Member

Antidepressants help with the serotonin for the brain chemistry. Neurotin, or generic is Gabapentin, for the fireworks that go off in my legs, swimming keeps me able to move and exercise without a lot of pain. I am able to take pain killers. Rest when the body says rest, force myself to get out of bed everyday. This disease is a dicotomy of its own. If u don't move, u can't move. Find support where u can, this blog is wonderful. Fibro fog, just have to deal with it. Try to go outside if only to sit on a step, or a swing, or a chair. The sunshine helps promote vit d which helps ur3 immune system. Seek an attitude of gratitude for what u can do. Love yourself!

May 27, 2019
A MyFibroTeam Member

The simplest gentle stretches have helped me tremendously 💝

September 25, 2019
A MyFibroTeam Member

@A MyFibroTeam Member I have discovered that Fibromyalgia tends to start gradually and symptom last increase over a period of months and even years. In my case I believe it started in my late teens early 20s with TMJ. Then headaches and migraines began and after a period of years hypo-thyroid. Over the years different diagnoses led to my eventual diagnosis of Fibromyalgia in 2009.

May 28, 2019
A MyFibroTeam Member

I went for physiotherapy and they gave me small gentle exercises to do before getting out of bed yep that easy u can actually do them in bed and they have helped me a hell of a lot

September 25, 2019
A MyFibroTeam Member

@A MyFibroTeam Member I use Hemp CBD Oil, heat helps sometimes, acupuncture & chiropractic care

May 27, 2019

Related content

View All

Reynaud Gloves

A MyFibroTeam Member asked a question 💭
Denton, TX

Mecications

A MyFibroTeam Member asked a question 💭
Knightdale, NC

Does Anyone Else Get The Numbness, Pins And Needles In Their Arms Whenever They Lie Down To Sleep?

A MyFibroTeam Member asked a question 💭
Kettering, UK

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in