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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Willenhall, UK

Hello everyone, my doctor has recently diagnosed me with MS from an MRI. He says i have to see a specialist as soon as possible. Another doctor also said that the specialist will have to do a lumbar puncture, which she said it can not be done under general anesthesia. I have done a lumbar puncture before and it was extremely excruciating because the local anesthetic did not work so I'm just scared to ha e it done again. Does anyone have any advice or suggestions?
Gentle hugs xx

May 22, 2019
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Answer Summary

Members rallied around someone facing a lumbar puncture after an MS diagnosis, sharing their own experiences and practical strategies to make... Read more

Members rallied around someone facing a lumbar puncture after an MS diagnosis, sharing their own experiences and practical strategies to make the procedure more manageable. Several members suggested requesting twilight sedation with medications like Versed and fentanyl, which are commonly used for outpatient procedures, and emphasized the importance of finding an experienced practitioner who will communicate each step and provide extra local anesthetic if needed. A recurring theme was validating the fear while offering hope, with members describing sensations ranging from firm pressure to minimal pain when done properly, and reassuring that advocating for comfort options is both reasonable and necessary.

A MyFibroTeam Member

I’d ask for an epidural see if there let you have that instead

June 8, 2019
A MyFibroTeam Member

I have a vitamin d deficiency too, but yes I do get pins and needles in my hands, legs and feet. Sometimes i get them on my arms but its rare.
My hands (mainly right hand) gets stiff if im using it for a while like preparing dinner and things like that it just becomes stiff and painful.
My skin becomes very sensitive to touch sometimes it all just sucks!
From what i was told the lumbar puncture is used to rule out any other illnesses and it also helps to see what type of multiple sclerosis you have.
Hope this has helped x

June 6, 2019
A MyFibroTeam Member

My doctor referred me to get an MRI of my brain, my main symptoms are fatigue, i usually loose feeling in my legs quite often and have these strange headaches where my head feels really heavy but empty at the same time i end up fainting when it happens. Maybe ask your doctor for an MRI of the brain and tell her/him your concerns.
Hope this helps feel free to ask anything xx

May 27, 2019
A MyFibroTeam Member

They are hard to do under general anesthesia due to positioning they like you to sit forward or lay on your side if your totally out it’s much harder to get into the csf fluid. You can ask for some versed and pain medication like fentanyl which is what they give for colonoscopies and other outpatient procedures. Gentle hugs and best of luck

May 22, 2019
A MyFibroTeam Member

Oops meant vitamin D deficient 😆

June 5, 2019

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