Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Find Doctors Who Treat (or At Least Understand) Fibro?

A MyFibroTeam Member asked a question 💭
Rochester, NY

Do you see ones out of pocket or insurance only? Debating and learning how to approach this.

May 2, 2019
View reactions
A MyFibroTeam Member

Within my insurance plan, when selecting a doctor, the list shows areas, like geriatric (important to older), heart, etc. that the doctor is more experienced in. I was fortunate that my primary care doc, new to me when my symptoms started, was able to recognize and has been treating me for 3 years. I am blessed with an understanding and patient doc who explains things.

May 2, 2019
A MyFibroTeam Member

I don't know where you are located, but the community mental health agency in my city is extremely understanding and knowledgeable about fibro and me/cfs (my primary diagnosis). If there is a community mental health agency in your area, you could try doing an intake there and see if you can get a referral. You can also point blank ask the intake specialist if they have any case workers who are familiar with chronic pain- you are allowed to screen them as they screen you. Best of luck. A helpful primary care provider is such a crucial resource. I hope everything falls into place for you.

May 4, 2019 (edited)
A MyFibroTeam Member

I also have the best GP so I’ve never had to worry! I do worry what I’m going to do when he retires!

May 4, 2019

Related content

View All

Medical Gaslighting

A MyFibroTeam Member asked a question 💭

Pregnancy With Fibromyalgia

A MyFibroTeam Member asked a question 💭
London, UK

Doctor In Los Angeles

A MyFibroTeam Member asked a question 💭
Los Angeles, CA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in