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Has Anyone Had Trouble Getting A Diagnosis?

Has Anyone Had Trouble Getting A Diagnosis?

I was diagnosed with fibromyalgia about 2 years ago but have more than just fibro symptoms. I have many rheumatoid arthritis and lupus symptoms as well as IBS/stomach pain but no doctors have been able to diagnose me with anything. I’m wondering if anyone else has struggled with this. I’ve had hundreds of blood tests done as well as ultrasounds, xrays, And a HIDA scan but everything comes up normal. I’m in a flare up now and am feeling hopeless and like none of my… read more

A MyFibroTeam Member said:

Yes! Absolutely have trouble with getting diagnoses!!! It's terrible and I am so sorry you are going thru this. It is NOT easy and is very discouraging.
My best luck has been with a good chiropractor and also with physical therapy. My chiro recommends vitamins and supplements.
Also I am just this past week having tremendous luck with an elimination diet. No sugar, no grains, and very little dairy. Has done incredible for pain going away. I have only had 3 pain pills in 7 days!!!!!!
Keep the faith, Keep sharing! ❤

posted about 1 year ago
A MyFibroTeam Member said:

Took numerous doctors and 10 years to get a diagnosis. I've been tested for everything under the sun, including rheumatoid arthritis, lupus, MS, scleroderma and it was finally a GP that diagnosed me. I'm with a doctor that specializes in it now but what a trip to get there finally.

posted about 1 year ago
A MyFibroTeam Member said:

Why do you think that you need more of a diagnosis? You just stated you have FMS, rheumatoid arthritis and IBS. That may not be what you want to hest, but geez, that's a lot of answers. Instead of continued tests, why not tackle what they've found? Have you found any meds that work to ease symptoms? Have you changed your diet? Educate yourself on those three things and see if you can control them. IBS is very treatable! I suffered for decades and now rarely do I need to take my dicyclomine. I slowly changed my diet, eliminating grains and most nightshades. It helped me with fibro pain too! Good luck!

posted about 1 year ago
A MyFibroTeam Member said:

Bless your heart! It CAN be hard to diagnose. I had symptoms for many years before I was finally diagnosed in 2017.. had the same tests as you and was also tested for Lyme. thought it was just osteoarthritis but my symptoms worsened over time. A lot of doctors don’t know much about this disease. Learn everything you can about fibro. This site is a great place! I am still learning. I can say now my pain is under control.. it takes time to find what works for you... hugs💕

posted about 1 year ago
A MyFibroTeam Member said:

I think that has played a huge part for a few of us @A MyFibroTeam Member. I also think doctor didn't give us the credit we deserve in knowing our own bodies.

A while ago I was at my neuro's office. The male PA came in and said I had a UTI. I said no it is my IC. We went back and forth on this. He said well I going to tell the doctor what you are saying. I told him to go ahead.

A few minutes later he and the doctor came in. My doctor said, "I told him you know when you have a UTI and when you don't. It's okay we don't need to run any test on you for that."

The look on the PA's face was priceless and rewarding. I was fortunate though it took me 10 years to find a core group of doctors who believe in me and listen to me.

I have had a number of doctors, and I am sure the rest of you as well, who thought it was in my head and how I should just l shut up and listen to them.

We have come a long way but I still run across people in the medical feel that I have to educate since they still are clueless or feel we can't possibly know our own bodies.

posted about 1 year ago
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