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Full Employment And Fibro
A MyFibroTeam Member asked a question 💭

I just want to know what kind of jobs you guys have? If there is such a thing as a perfect job for fibromyalgia sufferers? I'm a Zipline guide(8 years)...it requires me to be pretty active...some days are really hard..that good ol' familiar pain we all share...but, I'd really like to have a job in art. I have my bachelor's of arts so far(graduated Dec 2018)...but does anyone have any advice on starting a business with art? How to get started/get grants...Something so I can make my own schedule… read more

posted April 9, 2019 (edited)
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A MyFibroTeam Member

Thats a tough one. As you know stress adds to the problems with fibro, and stress of the work place, or unable to work, well, obviously its a conflict. Im a caregiver, and my fibro has helped me be a better one in alot of ways. Im able to teach what I know in treating myself kinder to whom I care for. I rest when I can, and share my stretching when appropriate. Having the mandatory healthy diet also carries over nicely. Employers are a little more difficult to contend with, and occasionally my coworkers, but, the ones I serve and I have done marvelously with this condition. School has also been an incredible attribute to my life since diagnosis, in that it has allowed my mind to flourish and ride away from the trap of pain. Cognition issues have been a contender sometimes. Ive done well to take really thorough notes to cover when its been impossible to function at the appropriate level. I recommend furtheri g education in a field of interest as part of an ongoing therapy, as well as career suiting a supportive lifestyle.

posted April 9, 2019
A MyFibroTeam Member

I only work part time as a floor nurse at nursing home. I work every other weekend and sometimes I can barely make that but I hang in there. They ask me to work more but I have to say no just to take care of myself. We are really short of nurses sometimes. I use to work extra but since my fibromyalgia reared its ugly head. I decline. If I didn't have to stand so much I could probably work more but my back, legs and hips just hurt like hell

posted April 9, 2019
A MyFibroTeam Member

Just a lil feedback: starting and running ur own business is really hard, and no work gets done when you can’t do it. Also, a job that provides benefits is really important. Not just medical benefits, but if you can save any money for your retirement through a company-sponsored 401k and any other plans they offer, that’s very important. Being sick is expensive. I want u to follow ur dreams, but keep this advice in mind as you plan ur path. Good luck.

posted April 19, 2019
A MyFibroTeam Member

I work full-time as an executive assistant. I am lucky because there are only three people in my office, and my boss goes on business trips all the time that allows me to work from home when he's not in town. My coworker is a good friend of mine, and my boss' sister-in-law happened to have fibro as well, so everyone understands that I may have to work from home. I can take care of my tasks as long as I have a computer and internet connection.

Before I got this job, I was an event coordinator at a university. Having to meet deadlines was very stressful, and having to escort students to different places was physically and emotionally difficult for me.

posted April 9, 2019
A MyFibroTeam Member

I had my own business before Fibro and itd hard when you are fit and well.
You can never really let up be ause you don't knw what tomorrw is going to be like so one tends not to let an opportunity escape

posted April 9, 2019

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