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With Fibromyalgia, we are hypersensitive to everything. We have double the sensitivities . Smell, taste, touch, hear, etc.
@A MyFibroTeam Member hi, oh my, I'm sorry you are dealing with that too! 🙁
Thank you for posting the question, it does help to know it's not me being extra difficult or odd. I was relieved to finally see an endocrinologist because my doctor had just told me to stop taking the Levothyroxine, and I had to wait another four months to get advice.
It was the endocrinologist that suggested the slow build up, and to find a pharmacy that sold a different brand of the same pill. I did and it is better. It is really tiny, about half the size of the original (already small pill) I had thought then how could such a small pill make me feel so bad.
When I very first started taking Levothyroxine, after day 8 I had terrible nausea, violent migraine like headache and huge sweats, plus my mood was awful, I became really angry. My doctor asked me initially to try again, which I did and the same thing happened. As soon as it built up I felt awful.
The other thing my doctor wass amazed at it, is that my thyroid levels are actually improving with taking such a tiny dose.
I'm due my third 3 month check next week. I'm hoping and praying that there will be further improvement.
You are certainly not alone. It is sad. I thank God for your friendship and sharing, and of so many here, it really does make a difference to coping through this.
My bedtime now.
Sweet restful sleep wished for you all 💛🙏🌹
Hi, my doctor has acknowledged that I am hyper sensitive to medication. The lowest dose of gabapentin, pregabalin, duloxetine and amitriptyline all sent me loopy. And now I have an underactive thyroid, I'm barely coping with a 25mg tablet, and I've had to increase every month from two pills a week - I'm taking 5 a week now. Most folk I've been told take between 100 & 200mgs every day. That would probably kill me!!
She knows that fibro causes hypersensitivity to pain, light, touch and smells too.
It is a tough disease.
God bless you 🌹🙏
@A MyFibroTeam Member it took huge diet changes cutting out lots of things, and 6 years to take it all off safely. I use a few things to help but I make sure that I avoid getting trapped in the food I grew up eating and make much more healthier versions of them. Bake, BBQ or raw depending on what I am eating and I rarely have anything fried, Last night was was tuna sandwiches for dinner and a piece of cheese, and a small orange. I am on a super specialized diet because of my health issues and tons of supplements as I am allergic to so many preservatives and gluten in additions to everything. So I do what I can. I have another friend with similar issues with foods and medications
@A MyFibroTeam Member There are several things such as yoga and thai chi for Fibromyalgia and arthritis that will help you. I also take supplements that helped me to loose pounds from 208 down to 158, and I am working on loosing pounds down to 135 pounds. I am 5'7" tall and loosing the weight help lowing the pain in my joint, and it also help stopping my hips for going out of the joints . I had to also loose weight to help reduce the effect of my throat and lungs caused by CO2 poisoned.
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