Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Vibrating

A MyFibroTeam Member asked a question 💭
New York, NY

Does anyone get internal vibrating sensations? This morning my left thigh has been vibrating on and off, both thighs are aching. My left calf had muscle twitching/fasculations this morning :(

March 22, 2019
 · 
Reactions

Answer Summary

Members connected over the unsettling experience of internal vibrating sensations, muscle twitching, and tremors that many described as... Read more

Members connected over the unsettling experience of internal vibrating sensations, muscle twitching, and tremors that many described as happening primarily in the legs, torso, and lower back, often worsening when tired or at night. Several members shared that neurologists attributed their symptoms to back problems, fibromyalgia itself, or centralized sensitization syndrome rather than anything more serious, with some managing relief through muscle relaxers like Zanaflex, while others noted that medications such as Lyrica can sometimes cause tremors as a side effect. A recurring theme was the frustration of living with symptoms that doctors often dismiss as something to endure unless quality of life is severely impacted, paired with reassurance that neurological testing has ruled out more concerning causes for many in the community.

A MyFibroTeam Member

I get the internal vibrations often. I also have like a low humming to my body as well. And I have muscle twitches that have been ongoing for 6 months now. Saw a neurologist had all the right tests, and have been cleared. Just fibro and Centralized sensitization syndrome.

March 25, 2019
A MyFibroTeam Member

Yes ive had this feeling like i could literally jump out of my skin. Its scary and miserable

March 23, 2019
A MyFibroTeam Member

@A MyFibroTeam Member
Hello, I’m sorry to say I don’t know the name of the medication. When she said that I just said no thank you. I thought oh boy I don’t want that. I may have to someday, but not now. I do take a muscle relaxer at night. 12mg of Zanaflex. That’s the only thing that relaxes my body so I can rest some. I tried Lyrica but couldn’t take it. It made me extremely depressed and my mouth swelled. The same thing with Cymbalta and Gabapanten. I also take 100mg of Pamelor at night. It’s a antidepressant with nerve pain benefits. My pain management doctor just put me on Belbuca. It’s a long acting pain medication that seems to be helping. I pray it continues to work.

Good luck with your upcoming visit. I would like to know what they say if you don’t mind. Sending gentle hugs your way.

Pam

March 22, 2019
A MyFibroTeam Member

@A MyFibroTeam Member
Hello my name is Pam.
I have this as well. Mine is in both legs, I often ask my husband if he can feel it when it’s really bad, but he can’t. Mine is related to my back, at least that’s what my neurologist says. She said I have to live with it, or take a seizures. I would have to be on it for the remainder of my life. I respectfully declined. If it gets to painful I guess I might. I take so much medication already I don’t want to add another. I have muscle spasms as well and I take Zanaflex ( a muscle relaxer) every night to tame the spasms. My back is destroyed, I have had multiple surgeries and it’s still a mess.

Anyway, I know that the internal vibration can be related to a lower back issue. Do you have lower back problems? I’m interested to hear if anyone who does not have back problems experiences this. With Fibromyalgia our entire bodies seam to misfire.

Praying you get some relief and some answers soon. Sending warm gentle hugs your way.
Pam

March 22, 2019
A MyFibroTeam Member

I get cramps, twitching and spasms now & then. It happens mostly below the waist.

March 23, 2019

Related Questions

View All

vibration

A MyFibroTeam Member asked a question 💭
Motherwell, UK
May 11, 2017

Shaking/vibrating feeling

A MyFibroTeam Member asked a question 💭
High Bridge, NJ
November 18, 2015

Tingling and strange sensations

A MyFibroTeam Member asked a question 💭
Oxford, UK
June 7, 2022