Are there certain medical papers with information which would help your doctor treat your symptoms of fibromyalgia easier?? Which fibromyalgia specialist do you recommend your doctor read to get the best and most information of fibro??

We are currently putting together a survey that we will be sending out to doctors. We need your input
What sort of questions would you like to ask a doctor? We are looking for generic type questions that could cover a multitude of different invisible illnesses.
Some of the questions we've come up with are:

Do you take a holistic approach to their care
Are you willing to work WITH the patient to manage their condition as best as possible?
Are you willing to work with other specialists to… read more

What I did the other night takes a lot from me mental to do. Only because I have other illnesses that I deal with that I have to think out clearly. That is the thing others forget that some of us have other illness that don't allow us to function at time cognitively. So for me it was mildstone that I accomplished the other night. Exactly what do you want me to share about fibro because mine is a journey that I had great support. Thank you for sharing with me

Where do you experience the most pain?

If finances are not a big factor, do you feel that being away from job expectations help our circumstances?
Freeing us up to rest, exercise and follow our own body's cues on a lifestyle that is best for us.

I always have to tell them to take my BP manually, if not my BP will go high wire. Any of you have the same issue?

In your best opinion and assessment, how much do you believe that two senior chronically ill persons need to live a reasonable quality of life in the United States of America? This is a serious and complex question if you will. Thanks in advance.

Doctors normally say Fibro is triggered by some sort of trauma (mental, physical, emotional etc)....

If this is true, what events do you think triggered yours?

For me could have been a number of things;
-open heart surgery @ 4years old,
-separating Vertabrae in back @12
-eating disorder-anerexia/binging/purging (still on going)
-endometriosis
-tearing stomach muscle @15
-car accident last year 1 month before being diagnosed.

There are many more but for me these are my top ones I think… read more

What does your doctor do for you when you you are in pain besides giving you meds? I've been to my doctor over and over for pain and all she says can be done is try this New med I've had side affects to so many meds that i don't want to be a guinea pig anymore. I need something that actually is going to help any suggestions? it's come to the point where I'm suffering everyday.

Continued from part 1

Restore Movement
If you are sick with an infection or cold/flu it is best to back off and rest. Again listen to your body it knows best. Use the daily planner to tick off each day you do your daily movement.

Journal
Try to journal one great thing you did each day and one thing you really want to achieve tomorrow. This is a great way to keep you proactive even on the bad days. Focus on what you CAN do not what you can’t do.

Bed Time
Aim to get to bed by 9:30-10:30 pm.… read more