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Lyrica.
A MyFibroTeam Member asked a question 💭

My Neurologist is now suggesting that I try Lyrica.
I have been on Neurontin for yrs.
It helps but doesn't always do the job.
I am curious to know other people's experiences with it.
I also just went to the pain Doc & he wants me to see a therapist who prob will want to suggest I take an antidepressant.
I just got off Klonapin & am nervous about what to do next.

posted February 23, 2019
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A MyFibroTeam Member

Lyrica will destroy your mind. I thought my husband was starting with Alzheimer's and here it was the Lyrica. It caused me to have involuntary muscle spasms. Be careful.

posted February 24, 2019
A MyFibroTeam Member

All of these drugs will eventually make us worse . The fact is all the side effects let alone what it’s doing to your kidney,liver,pancreas. I prefer something that doesn’t change your mind or make you a zombie.

posted February 24, 2019
A MyFibroTeam Member

Neighbor/ friend where we lived previously was on it . She got suicidal thoughts that scared the bejusus out of her. I would not recommend it for anyone who has depression , even mildly.
I know it does help a lot of people. Do your research .

posted February 24, 2019
A MyFibroTeam Member

I took Neurontin and then, when Lyrica was available, switched to that. Both had side effects for me and eventually my doctor and I decided none of the drugs in that class work well for me. Side effects are different for every person though and it was totally true the Lyrica worked! It. is hard sometimes to decide if side effects are in one column and benefitss in another which is greater. I also took klonipin and I would drop that so fast for an antidepressant. They work completely differently and an antidepressent will give you a longer range result. Good luck to you, keep us posted. Breathe through the beginning part!

posted February 24, 2019 (edited)
A MyFibroTeam Member

I have friends who have very good luck with Lyrica, each of us is different and I had very bad reactions to it as well as Neurontin and Cymbalta. Cymbalta is the worst, I don’t know of anyone who didn’t go through a long withdrawal period when they wanted to get off it. I tried them over eight years ago and don’t remember which caused what reaction but it ranged from bloating, weight gain, personality changes, nightmares about death and a variety of others. Keep in mind all three of those meds were originally designed to prevent epileptic seizures so they will do funny things to your head and body. I felt like there were hands on my brain twisting it, I felt like I was losing coordination and being slowed down.
There is only one medication specifically for fibromyalgia that I know of and that is Savella. I have been on that for 7 years, it helps a lot with depression and fibro fog, not much in the way of pain, when that gets bad I take a fairly low dosage of hydracordone. I still get depressed which I never was until I developed FM but the depression is manageable with Savella. I recognize when it’s coming on, give into for a self indulgent hour and then tell myself to get my butt in gear and MOVE, do something even it’s just to dust a table. If pain is involved the hydracordone helps with both. I take the Savella faithfully every night, if I don’t I can feel a difference and get very irritable.
Hope you have a good night tonight and sweet dreams.

posted February 23, 2019

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