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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Driving With Fibromyalgia

A MyFibroTeam Member asked a question 💭
Gloucester, UK

How do you cope with driving? I haven’t driven for a few months because I’m frightened I will get brain fog and cause a accident, I’m not sure really, miss the driving, I want to drive, will mention this at my next neurologist appointment

February 17, 2019
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Answer Summary

Members offered warm encouragement to someone nervous about driving with fibromyalgia, with the most common advice being to start with short,... Read more

Members offered warm encouragement to someone nervous about driving with fibromyalgia, with the most common advice being to start with short, familiar routes, use navigation tools even on known paths, take breaks every two hours during longer drives, and focus intensely without distractions like music when brain fog feels heavy. Several members shared their medication experiences, including mixed results with gabapentin (which some found worsened memory and concentration), preference for Lyrica despite weight gain side effects, and relief from tramadol and hydroxychloroquine, with many emphasizing the importance of trying different options to find what works. A recurring theme was reassurance that members did not need to inform the DVLA about fibromyalgia itself, only certain medications, and solidarity around maintaining independence and not letting the condition take away more than it already has.

A MyFibroTeam Member

Thank you so much for that advice,💐 That’s what I’ll do, I’m just going to stick to local areas, no more struggling with heavy bags from supermarket shopping 😀.
I’ve read that if you’re diagnosed with fibromyalgia you have to inform the DVLA and insurance? I’ve not yet done that, I’m scared they will take my license off me ☹️ but if that happens there’s not a lot I can do...

February 17, 2019
A MyFibroTeam Member

Just do short trips to start with & something that's a familiar route this was recommended to me as I have depression & anxiety now, I never thought I'd ever need a satnav! But if I'm doing longer trips I use it, I also only drive for 2 hours maximum then I stop & get out for walk, drink etc so I just add another hour or so to the drive time so I can get the breaks in & still arrive on time, I don't do long drives very often now but this is the method I used when I had to go to London couple of weeks ago for training,
Hope this helps you sweetie, Fibro takes so much from us so it's a triumph to retain this bit of independence xx

February 17, 2019
A MyFibroTeam Member

I used to take gabapentin, but found I couldn't take more than a total of 300mg per day. It would really mess with my memory and train of thought. There are alot of days I have to really super concentrate on my driving. No music on or any distractions. I never found the gabapentin worked all that well either. Maybe ask your doctor to try something else.

February 17, 2019
A MyFibroTeam Member

As far as I am aware it's just certain medications that you have to inform DVLA about not the diagnosis. I don't like driving short distances if it involves a lot of traffic or mainly due to gear changing. Motorway driving is ok because don't have the gear changes.

February 17, 2019
A MyFibroTeam Member

@A MyFibroTeam Member I've never heard that you have to inform DVLA or insurance company, I've been officially diagnosed for 3 years & treated for something else 8 years prior, my rheumatologist has never said I have to inform DVLA, so I would just carry on sweetie unless you have seizures or fainting spells x

February 17, 2019

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