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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question ๐Ÿ’ญ
Hickory, NC

I have been having vision issues for the last 3weeks. I have had fibro for20years and never experienced this. I went to my doctor and i collapsed in the parking lot.i was admitted into hospital as they thought possible mini strokes.MRI,CT and spinal tap all came back fine.. So know they are treating me with topamate for migraines. This it's very frustrating.i do not want another LABEl but sure would like to know what is happening. Has anyone experienced this vision,tremor,and balance issue ?

January 13, 2019
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Answer Summary

Members shared experiences with vision problems, balance issues, and tremors related to fibromyalgia, offering solidarity to someone recently... Read more

Members shared experiences with vision problems, balance issues, and tremors related to fibromyalgia, offering solidarity to someone recently hospitalized with these symptoms. Several members described similar vision fluctuations, with some attributing them to medications like Plaquenil or Topiramate, migraine auras that create temporary blindness or blurriness, or conditions like Sjogrens that dry out the eyes, while others found relief through alternative treatments like acupuncture or using artificial tears. A recurring theme was the frustration of feeling like a hypochondriac when symptoms are hard to explain, the challenge of determining whether new symptoms are fibro-related or something else, and the comfort of having doctors who believe you even when answers remain elusive.

A MyFibroTeam Member

I have had vision problem for several years now. I have one fully dlated unresponsive pupil ad the other one is sluggish. Nobody can tell me why but it does cause problems with sun and dark. Virtually blind when it's dark. Blurry vision is a common occurrence too. Difficult to move from close work to distance and vice versa. Now getting migraine type symptoms.
Getting fed up with all the different manifestations of fibro. Feel like a hypochondriac some days.

January 16, 2019
A MyFibroTeam Member

I am sorry to hear. I know when I get migraines, I get what they call an "aura" about 30 minutes long before the migraine pain comes. During that time, I am unable to see, it is like a film over my eyes. I also get bad balance issues at times and tremors at night sometimes. I hope you get some relief.

January 16, 2019
A MyFibroTeam Member

I have never fainted, however do experience the vision issues, tremors and balance issues right before a migraine strikes. I have what is called chronic complex migraines...I think it is part of fibro. I hope you feel better soon

January 14, 2019
A MyFibroTeam Member

Cluster headache or ms is my guess.

January 14, 2019
A MyFibroTeam Member

It could be MS

January 14, 2019

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