Does anyone else get a little confused when getting around this site? I have problems with it. Maybe because I have to use my phone. It's it easier on a PC?
I ask this question because I can't help but notice people do not send to stay active. My self included. I feel more people would join and stay active if it had the simplicity of a Facebook group. It's so much easier to share things and be involved.
Is this a possibility? Or is there something that can be done to make this page more… read more
Answer Summary
Members shared mixed experiences navigating the site, with several finding it confusing on mobile devices but easier to use on a laptop or PC.... Read more
I have been on here for about a year. I have had fibro for over 30 years so I come on several times daily and check the questions to see if I have any answers to help someone. I really don't tell people how I am daily because its pretty much the same. I have a lot of people on my team but don't interact with them unless they ask a question. I agree that maybe there is an easier way to communicate to each other but I don't know what that would be. So I just continue to try to answer questions and help people since that's about all I can do with this horrible disease that we all live with every day. Have a nice weekend everyone. Hugs
Yes iiy is hard to get around.
Agreed
It's a little confusing to me how do they know what team to put u on? I just talk to others about what I'm going through and communicate with them this way I know that some one understands me and I understand them people that don't have any autoimmune illnesses just don't get it.
I go through stages. I haven't been on this site for a long time but before that was addicted to it. I think my pain levels dictate to me whether I'm going to use it or not. If I'm in a lot of pain I will use it and sometimes I feel like not wanting anything to do with the site. I think it helps to assemble your team cos then you get alerts and keep more involved.