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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Langford, Bedfordshire

I’ve not used this sight before so hello to all you sufferers. Why I’m asking is because I’m not sure if I’ve got fibromyalgia because you have several parts of your body hurting I can see from the research I’ve done.
Thank you
Look forward to hearing from anyone.

December 10, 2018
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Answer Summary

Members responded to someone unsure if their upper body pain qualified as fibromyalgia, with many sharing that their own symptoms began in... Read more

Members responded to someone unsure if their upper body pain qualified as fibromyalgia, with many sharing that their own symptoms began in localized areas like the neck, shoulders, and upper back before eventually spreading throughout the body. Several members emphasized the importance of seeing a rheumatologist for proper diagnosis, noting that fibromyalgia typically requires pain in all four body quadrants and at least 11 of 18 tender points, though symptoms can vary and change daily in early stages. A recurring theme was reassurance that the community is there for support, along with practical advice about medication options like gabapentin and encouragement to stay proactive with medical care despite the challenging journey ahead.

A MyFibroTeam Member

Yes. Many of us start out with only pain in one or two areas but unfortunately it spreads to our whole body. Mine changed daily when I first got it. One day my left arm hurt the next day my right leg hurt. I thought I was a hypochondriac because of it. Definitely go to a rheumatologist to get a diagnosis. Good luck and we are here if you have any questions.

December 10, 2018
A MyFibroTeam Member

I first got fibro in the same areas but it was after three shoulder surgeries so I just thought it was that. Then the fatigue and depression took over and that’s when I started asking my doctor. First time he checked the pressure points it was a no but a year later, oh yes, it hurt all over! Sounds to me like you are at the beginning of a long dark road but know we are all here for you!

December 12, 2018
A MyFibroTeam Member

I believe that you are required to have pain in all 4 quadrants of your body to be officially diagnosed with fibromyalgia (along with pain in at least 11 of the 18 tender points), though that doesn't necessarily mean that you don't have it, I'd definitely ask your doctor to do an exam to be sure. Regardless, I hope you find some relief from the pain <3

December 11, 2018
A MyFibroTeam Member

I have muscle pain only in neck, shoulder,s and upper back which I thought was due to a broken neck I suffered in 2016. I have heard that some have localized areas. I always carried tension in my shoulders so I guess the broken neck chose that area to aggravate.too.

December 11, 2018
A MyFibroTeam Member

Mine hurts night and day all the pain in the places you mentioned. Kimlane

December 10, 2018

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