Thanks ladies! Im taking a hot bath now. Been a stressful day. Husband is working today so just me with the kiddos. They had gymnastics this AM and whilst I was trying to use the bathroom, both decided to go outside in the front yard despite me telling them never go into the front yard without a parent. I could see my son running towards the road from my bathroom window [as I was mid poop]. Sorry - TMI , I know. So im scrambling to try and pull my pants up to run after him and yell not to dare go out into the road. He’s only 3.5 yrs. As we all know stress responses, particularly ones where your cortisol just blows up, are not the best for us so by early AM, I’d already gone into full fight or flight mode. Then taking them to gymnastics and just trying to run errands made things so much worse. Now it’s 4PM and I just want to go to sleep. I tell my husband all the time, “please dont take weekend jobs! It’s so hard on me!” He doesn’t listen. It’s so easy for the person who doesnt have FMS to just not understand. My heart goes out to all of us. This is not a pity party but FMS has really changed my life. The chronicity of it all. And for me it’s not so much pain bc I can actually deal with a lot of pain but it’s just always feeling uncomfortable or fatigued or weak or just about 1/3 of the human I used to be! It’s the constant planning my day around this Gosh awful illness. Can I take my kids to the park and go grocery shopping and still cook dinner or will I spiral into a total meltdown both mentally and physically? That’s literally how my weekends are framed up these days? I work fulltime and we’ve literally eaten out all week bc my husband worked all last weekend and i knew trying to drag two kids to the grocery store would have killed me and trying to grocery shop after work was not going to happen either. It’s amazing the extents I’ll go through to avoid stress bc stress will send me into a full blown physical meltdown. Writing out the list of compromises I now have to make with my own personal self and reading them outloud is just plain embarrassing! Who am I? Who is this new person? That’s how I feel most days! Tomorrow my husband is off so we will go grocery shopping after church then i have a childs birthday party to take two kids to (oh joy). My husband wanted to go hang out at his sisters for dinner but i have to work early monday AM and due to my shit sleep habits, if i dont get to bed by 9, im toast the following day so i wont be partaking in that either.

I was having that with tendonopothy degeneration in both elbows and went to an OT physical therapist that specializes in elbow down to fingers. I can’t believe the results... I keep doing the PT exercises at home.

Hiya. I have the same issue, some of mine is down to my osteoarthritis, but i noticed a weakness long ago,and its gradually getting worse. Ive lesrnt now,nothing with my body is a surprise. What will be will be,theres not an awfull lot i can do about it. Just keep up the exercises and take things at a steady pace,and above all, keep positive. Love and hugs to all.xx

Many of the numbness and pain issues that I have read about above can be linked to neck issues as crazy as it sounds. Some are ulnar nerve issues and some are all the way up in the neck (especially if you have spinal issues on top of the Fibro). Trigger Point Injections with lidocaine or dry needling if you can tolerate it help substantially. If not, trigger point type massage therapy helps many.

It can cause numbness, tingling, sensation of swelling, lack of strength, dull sensation, and so much more.

I spent 2 months numb in both arms from the elbows down and could not hold onto anything. It took me seeing my original Trigger Point person to get it fixed as the one who had moved to the clinic I went to was not getting the spots that needed to be done to prevent it. Because so much time had gone by it took a month of weekly sessions to get it to be fixed and I have not had it return since other than a day or so here or there in the past 3 years.

You have to remember that one of our "spots" is on top of our elbow so it is a normal Fibro thing. It is just finding what works for you to get it fixed without having someone tell you something inaccurately. Someone in my area that I know with fibro was diagnosed with carpal tunnel and was about to have the surgery in both hands when she got worked on by a chiropractor who did dry needling and a trigger point massage therapist. Within two weeks, her pain was completely gone and she was saved from surgery since surgery is the absolute last thing for anyone with Fibro to do unless it is an absolute emergency to save your life.

Good luck on your journey!

Isn’t Fibro fun?! Not! Yes I feel at times my strength is going. I have problems with my whole left side. Some comes from the tendons tightens up, inflammation and nerve damage. I swore to myself I wasn’t going to end up with having a dozen different kind of doctors but I am being to think I was wrong. I go to a orthopedics doctor and get Cortizone shots for the inflammation , RA doctor for pain medicine. Nutritionist to eat right and now a neurologist And found out I have neuropathy, nerve damage in the left foot, a pinch nerve in the lower back, sciatic nerve messed up. Tomorrow I go back to neurologist to have a PNCV and EMG done to see how much nerve and muscle damage there is.
We sometimes have to push our primary doctors to send us to other types of doctors till we get a true answer.
Prayers that you find out what is going on!