Did you see a specialist? Your GP? How did you fond the details and treatment you needed
That sounds just like what I went through, for years I kept going to my gp complaining about the pain and how I felt like I had been ran over by a steam roller, but was just past from pillar to post in the rheumatoid department, finally two years ago a dr finally diagnosed fibro, I had never heard of it so thought I was just being palmed off until I got home and googled it, I really do think more needs to be done about this condition and make more people aware.
First saw GP and was referred to rheumatologist. They did lots of tests said it was in my head. Then consulted a fibro π©ββοΈ who was not in my area but willing to consult with GP and together they diagnosed fibro. Had to go thru lots of testing to rule out other things before they were convinced. Some doctors donβt believe in fibro. So you have to do research and find one that works with patients with fibro
I was diagnosed by my internist. His practice group wouldn't allow referrals for fibromyalgia, so he treated me himself. He prescribed Cymbalta, which made me sick and did not help much. He did offer narcotics, but I didn't like them. He eventually tried "dry needling," but on the second attempt, he punctured my lung, landing me in the hospital for a week. After that, he finally sent me to a pain specialist, who prescribed Lyrica and offered me nerve ablation for my neck and low back. I decided not to do nerve ablation and a new internist agreed to continue my Lyrica prescription. A few months ago, I finally saw a rheumatologist, but she seems intent only on ruling out rheumatoid arthritis; I haven't seen her since the initial visit, but I'm not holding my breath.
My GP. I have had two or three issues over years. RLS, leg pains, insomnia. So about 5 yrs I started having elbow pain. Tummy issues, headache, and my back was not good. This started right after surgery. My DD did the symptom checker and webmd. So went to appointment. We had thought fibro. The Dr did her assessment and thought fibro . Had a bunch of xrays.
In 2015 I was sent to a cancer doctor because of abnormal blood work. She just kept taking bone marrow samples as the pain got worse and worse. She said she thought I had Mastocytosis. After a while I got tired of all the pain and her doing NOTHING about it. So I researched Mastocytosis and found out that an Allergist is who usually diagnosis it. So I looked in my area for allergist that specialized in Mastocytosis. I made an appointment and he said right off he did not think it was Mastocytosis he thought it was RA related. He ran some tests that proved it was NOT Mastocytosis and he did NOT make me get a bone marrow sample. LOL He recommended an RA and she ran tons and tons of tests. I even was put on Methotrexate for a while which is a breast cancer drug used for immune diseases. After a few months of trying different meds she gave me gabapentin for my back because she though I had nerve damage and the pain eased up. Then she had an ah ha moment and started poking me a certain points on my body my shoulders etc. It felt like she was poking me with a pointed stick. Then she printed out an information sheet and told me I had FM. I had all the symptoms on the sheet. Everything started in 2003 when I got pregnant with my son and 15 long and very painful years later My RA believes she has figured it out LOL.