I know fibromyalgia isn't generally considered a progressive disease but has anyone else noticed that the longer they have it the more widespread the pain and symptoms become?
My symptoms started 5 years ago and I would have to agree the longer I have had them the more widespread they have become, but I think that I am also much more aware of my body... more than I was originally.
12 years, could be 14 years. I used to do alot of photography and i got to the stage when i couldn't carry my long lenses. Then I went to the doctors and was given 8mg of codeine. I tolerated that fool for too long because in time the pain radiated down my arms, across my chest and into my back. Later lower back. numbness in my legs and difficulty walking. I now wake up screaming, having to lift my head off the pillar. I had to position a bookcase parallel to my bed to support me until I can walk and then thats with aids. Racing for that first coffee, many others follow.
My depression is worse but i suffer with Bipolar and PTSD. Either of those can disable me but this on top is the final straw. Projected images into ones mind is frightening.
How do you take a positive outlook on life when suffering such afflictions.
I attended the pain clinic and towards the end, she said there is nothing more I can do for you. She had x rays showing severe spinal wear and hip issues. If the pain management team is giving up then where do you turn. I was having acupuncture, that helped but eventually the doctors wouldn't fund it, so that stopped. In oct I am booked in for psychotherapy based on pain. and late sept MRI for full body scan.
Does it get worse. It sure does. They are restricted drug wise, they can't provide strong opiates because the dose will eventually be sky high.
Even without this tedious disease, joints can wear out.
Fibro definitely gets worse as time goes on!! Doctors can say whatever they want but unless they have it, they won’t realize how bad it gets! At the beginning of mine (after three surgeries) I only had fibro in the winter! Then it became spring, fall and winter! Now it’s all year long and all over from my neck and face to toes! At least I don’t have migraines!! You are not going crazy or a hypochondriac, it definitely gets worse!!
Migraines started for me from the age of 5 so it was the norm for me. I also have depression/anxiety but most of my symptoms all started when I snapped my finger and needed surgery. I had complications and ended up with chronic regional pain syndrome ( CRPS ) that’s when everything else started to pile on and I have since been told that Fibro can be onset from a trauma. My pain can be all over my body or it can just choose certain parts, like my hips or my hands. Tingling and pins and needles is also common for me in my feet, hands and up to my elbows. There are so many symptoms I’m learning about associated with Fibro that I was not even aware of. I wish you well, my saving grace is heat packs, I can’t live without them, and also trying to keep my stress levels to a minimum... that is probably the hardest.