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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Pietermaritzburg, ZA

I wish I could go back to the days before my accident in 2002 when I was still so active and was able to do 10-15 km with no pain or fatigue. I miss those days so much, just walking up steps now kills my knees and ankles. Luckily magnesium seems to help my recovery, but not a quick fix for me.

September 3, 2018
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Answer Summary

Members connected deeply over the grief of losing their former selves to chronic pain and fatigue, with many describing how activities like... Read more

Members connected deeply over the grief of losing their former selves to chronic pain and fatigue, with many describing how activities like walking, playing sports, working, and socializing have become nearly impossible, replaced by isolation and dependence on others. Several members shared the emotional toll on relationships, expressing gratitude for supportive partners while mourning the loss of intimacy, independence, and the vibrant person they used to be. A recurring theme was the daily struggle between anger, hopelessness, and the challenging work of rebuilding a meaningful life from the wreckage, with one member encouraging others to practice self-kindness as a starting point.

A MyFibroTeam Member

Ye I was so different personality wise before I got the onset of my symptoms, I enjoyed my active life a lot.

September 4, 2018
A MyFibroTeam Member

Omg everyday!!! I wonder how I would be now that I’m 56 instead of forty-two! Would I still be active playing sports? Would I still be at my job that I’d been at for 21 years or would I have switched to my husbands employer who has now moved to our city? Would I still be the happy, fun person I was or would that have changed with age? I truly miss my old self and find I am the miserable old b**ch I never wanted to be! I try so hard to be thankful for what I still can do, which isn’t much, but I wonder everyday what life could have been!😢

September 4, 2018
A MyFibroTeam Member

I sure do!! I miss the person I was before. I did for myself didnt have to ask for help with anything. Not getting too personal, but I miss what my husband and I had before this started. Thankfully I have a strong marriage that is surviving the loss.

September 3, 2018
A MyFibroTeam Member

Ooh I know exactly how you feel!!! I get scared it's too much for him at times and he will leave but he still stays and helps me!!! So at least we are blessed by having our partners to help us thru I don't think I could do this without my soul mate my husband and I thank god every night!!!! My prayers are with you!! Your not alone💞💞

September 4, 2018
A MyFibroTeam Member

Ye the more fatigue and pain I get the less I want to interact and just want to sleep and missing so much of my life.

September 3, 2018

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A MyFibroTeam Member asked a question 💭
Champlin, MN