Connect with others who understand.

sign up log in
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Heat/sun Intolerance And Fibro?

Heat/sun Intolerance And Fibro?

For about a year now, whenever I go out into the sun for more than an hour at a time, I feel incredibly sick once I get out of the sun, and it lasts for either a few hours, or a few days after. Sometimes, it feels like my skin is burning, but there’s no actual sunburn there
I’ve tried to research this, but not much has come up. I was wondering if anyone else has gone through this, and if it is a symptom of fibromyalgia
I recently had my blood work done, too, where they checked for lupus and… read more

A MyFibroTeam Member said:

Are you taking any meds that make you sensitive?

posted almost 4 years ago
A MyFibroTeam Member said:

It's a side effect of your meds. I have four meds that make me sensitive to the sun. I wear a hat and sunglasses. It allows you to be in the sun more often.

posted almost 4 years ago
A MyFibroTeam Member said:

Yes for years now I have not been able to be in the sun. I was told it was because of all the medications I take. Also my skin, face, head seems to be hot for days after sun exposure. The thing I do to prevent a full on episode of migraine, nausea, dizziness, burning eyes, is to cool down my body as quickly as I can even with just a cold face cloth. keep the face cloth on my neck. drink lots of water and maybe just lie down if I feel too nauseous. This year I have developed massive body sweating from slight exertion or from becoming nervous. They say Botox will help with that?

posted almost 4 years ago
A MyFibroTeam Member said:

Hey all im the same. The more im expose to sun, heat or light im screwed over. Im photophobic which means wearing sunglasses everywhere even at night and light intolerant is there assumption. But there is a rarer condition that a specialist can do. Brain fog stopping me remembering the name atm. They test your urine but do not expose it to any light and immediately wrap it in foil. Im in australia and it is considered unusual here but does that not just some up almost every fibro symptom. I always say to my gp when things are divided up into percentages go through the under 5% options and the answer will be there. So much faster.

posted almost 4 years ago
A MyFibroTeam Member said:

I have the burning skin from time to time and it’s called allodynia as Nallewoh said. I used to have it constantly, but now I only get it occasionally. Removing sugar from my diet helped this symptom. I use stevia in place of sugar and follow the paleo diet. I have my medicinal cannabis card and the cannabis creams help with this symptom as well. Just google fibromyalgia and allodynia.

posted almost 4 years ago
Already a Member? Log in