Does anyone else feel exhausted then go to sleep or take a nap and wake up feeling even more exhausted? Really struggling with the fatigue part of things x
Most mornings i feel tired even after 10 hours sleep - rarely infeel refreshed after sleep but when i do i feel so happy. It takes me an hour ir two to feel fully awake.
Same here. I used to be a morning person pre fibro but not now
I had fatigue for months and I still get it slightly now but my energy level has bounced back heaps. Good balance of resting and gentle exercise helps. I find it useful to break up house work so you don't do too much in one go - need to be very disciplined with this. Excursions give me confidence. I started with short drives and little walks before adventuring to returning my old book club and going to the city by train. Now I can volunteer at an op shop (just for 3 hours) 2 or 3 times a week. There is still some way to go and I may never be as good as before but I'm OK with that. My GP said we can gradually trick our brain back to the status in which pain is not so magnified. Distractions are good, I find Youtube wonderful - standup comedies, music and meditation, whatever works. Don't tolerate high level of pain, talk to a professional who specialize in managing complex regional pain. "No pain, no gain" is wrong in our case. "No pain, no pain" helps the brain to get the right message. To fight the pain, we have to be patient and outsmart it! Medications have their place but ultimately, it is the strategies that work best. I still have low level of pain (and the pain level continues to drop) but I haven't had meds for months now. I really want to share my experience to encourage peers. Occasionally I still have flareups but I know it will pass. I believe we all can improve, with the help of professionals.
Sameherei ha r colitis Fibro and CFS. Aren't we the lucky ones ha!! Not
Yes I wake up and never feel refreshed. I need alot of rest and sleep.i think this is my biggest struggle.
I do get energy but I use it up then rest and start over again.
This has been the hardest thing to do is pace myself.