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A MyFibroTeam Member asked a question 💭
Jacksonville, TX

Does anyone get really bad neuropathy? Usually at night I get stings (like a needle) in my feet, or even on my face or arms. God Bless you all.

July 18, 2018
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Answer Summary

Members connected deeply over the conversation about experiencing severe neuropathy, sharing symptoms that ranged from needle-like stings and... Read more

Members connected deeply over the conversation about experiencing severe neuropathy, sharing symptoms that ranged from needle-like stings and burning sensations in feet, hands, and face to numbness, temperature extremes, and sensations described as electric shocks or bugs crawling on skin. Several members shared that Gabapentin is commonly prescribed but often provides limited relief and can cause drowsiness, while others mentioned practical strategies like wearing socks or slippers at home, using hot tubs for relief, pacing activity to prevent flares, and managing coexisting conditions such as plantar fasciitis, restless leg syndrome, and diabetic neuropathy. A recurring theme was the frustration of living with unpredictable and often excruciating pain that disrupts sleep and daily life, balanced by the comfort of knowing others truly understand these struggles and the determination to find small ways to manage symptoms and still participate in life.

A MyFibroTeam Member

I was just diagnosed with non diabetic neuropathy. My feet burn and hurt so bad that I cannot stand or walk too far if I do my feet get numb. Hope and pray that they find a cure.

July 18, 2018
A MyFibroTeam Member

I do! Once my body is at rest especially after an active day. I try to pace myself when ever possible, with more time spent at a break than actually getting done what I need to do. If want to go to a family get together I must rest as much as possible before hand in order to go & realize the time spent with my loved ones is worth the pain I'll have the next day.

August 5, 2018
A MyFibroTeam Member

Hi Dianne ...
That’s Initially What My Symptoms Started With, Roughly 30 Years Ago Now ...
I’d Get, What I Described It Like, ‘Electric-Shocks’ Starting In My Feet, Up My Legs, Then Onto The Rest Of My Body ...
Obviously At The Time, I Didn’t ‘Know’ What ‘Neuropathy’ Was, Just That It Caused Me / Still Does, ‘Excruciating’ Pain ...
As MelissaBergerHaren Explains Her Symptoms, Which I Can Totally ‘Identify’ With ‘All’ Of Them, I Too, Take The Same ‘Precautions’, Plus ‘More’ Yet, I’ve Found That ‘Nothing’ Has Helped Over The Years ...
These Illnesses Present Themselves, With So ‘Many’ Horrendous Symptoms, That It Makes ‘Life’, Well ‘My’ Life And I ‘Know’ Thousands Of ‘Others’ Too, Totally ‘Unbearable’ And Pretty ‘Horrific’ The ‘Majority’, If Not ‘All’ Of The Time ...
Then, If You Add Into The ‘Mix’, The ‘Neurological’ Symptoms, The Overwhelming ‘Depression’ Plus So ‘Many’ Other ‘Mental’ Health Problems, Alongside The Endless List, Of ‘All’ The Seriously ‘Painfull’ And Utterly Debilitating ‘Physical’ Disabilities Too, Then You Get An ‘Overall’ Picture I Guess, Of What Life Is Like, Living With These Illnesses On A ‘Daily’ Basis I’d Say, For The ‘Majority’ Of Us ...
Im Here, Even When ‘Suffering’, As I Am Currently, For Anyone Who Needs To Talk / Maybe Has Questions Or, Just Would Like To Chat, To Somebody Who ‘Understands’ As, I ‘Know’, Trying To Talk To The People Around You Everday, Well They Just Don’t ‘Get-It’, Which Is As ‘Frustrating’ As Hell And ‘Demeans’ The Seriousness Of My / Our Conditions...
Sending Much Love N Big, Yet Soft Gentle Hugs Everyone’s Way, Not Just Today But, Everday ... Trish xx ❣️

July 19, 2018
A MyFibroTeam Member

Absolutely. My face is inflamed most days. My body always looks like I've been sunburn. It's stings and nothing helps. I have had a neuropathy bladder stroke 2x in the last 2 years. (The part of the brain that tells you, your bladder needs emptied ) has what they call a neuropathy bladder stroke. It comes back around 6 to 7 months. My hands and feet have those pains most nights.

July 18, 2018
A MyFibroTeam Member

I had written yesterday that I was at podiatrist. Well both feet are taped up. I have plantar fasciitis and Achilles tendonitis. .
He gave me some stretches to do. Don't know if it's going to help. I'm going to try them. If they help I would be glad to share with anyone who wants to try them.
Hugs and prayers are with you all.

July 19, 2018

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