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A MyFibroTeam Member asked a question 💭
Wichita, KS

I'm in pain but not as bad as others. It took two years to diagnose me with fibro after running tons of tests. I have mental illnesses and have had the switch the pills routine before. I know my primary care doctor doesn't know much about fibro. What are your thoughts?

July 12, 2018
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Answer Summary

Members shared varied experiences about whether to see a specialist for fibromyalgia, with many finding their primary care doctors provided... Read more

Members shared varied experiences about whether to see a specialist for fibromyalgia, with many finding their primary care doctors provided better, more personalized care than rheumatologists, while others valued getting an initial diagnosis from a specialist before returning to their PCP for ongoing management. Several members discussed practical treatments that have helped them, including lidocaine and diflofenac patches, CBD oil (both topical and sublingual), massage therapy, chiropractic care, physical therapy, and supplements, with many emphasizing that relief often comes from combining multiple approaches rather than relying on a single solution. A recurring theme was the importance of self-advocacy, learning to listen to your body, resting when needed, and being proactive about researching treatments since fibromyalgia is complex and what works varies greatly from person to person.

A MyFibroTeam Member

I think it depends on the Dr. I get more , better care from my pcp then I did from my rhuemotolist and pain management. Right now I only see my pcp every 3 months. He keeps me stocked up on medication and gives me shots whenever I need it. Hugs and Prayers

July 12, 2018
A MyFibroTeam Member

A rheumatologist diagnosed (finally) me. I have never seen a specialist. My PCP is wonderful and I believe she knows enough to have informed compassion. My head trauma also messed up my brain chemicals. For 17 years I farmed the pharm--told I'd never function without pills. I stress to all--be proactive in your pharmaceutical care. I was late to the game on that one.

July 12, 2018
A MyFibroTeam Member

I see a Rheumatologist for fibro. I am seeing an integrated medical doctor next month. They help heal the body as a whole not just a symptom. Looking for her to help me with supplements and see if I can go a more natural route in dealing with the fibro. It took me a while to find her as we did not have one in our area until recently. I see my PCP for regular issues and Celiac.

July 12, 2018
A MyFibroTeam Member

I see a pain management specialist for my treatments. over the years I had primary care doctors prescribe medications. I also see a physical therapist (at my own request) and try to research as much as I can on the condition to benefit myself. Knowledge is power.

July 20, 2018
A MyFibroTeam Member

Soulshine. In reference to the pain patches. I alternate for the best results with patches and topicals. My Dr. prescribes me Lidocaine patches 5% at first now 10%. I also use Rx topical pain cream called Difleconac. Both effective. I also like topical creams with Arnica and Topricin. CBD also has a topical ointment with eucalyptus that is awesome. I may still have pain but it is dull vs severe. Sometimes even pain free. Along with sublingual CBD. For the PTSD the CBD oil and a beta blocker is what I am curently on. I have bad panic attacks due to the death of my daughter. I can take it as needed and it's non narcotic. I had to find my accurate dose. But it really works for me.
Hope this helps 🙂

July 14, 2018 (edited)

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