Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Concrete, WA
May 25, 2018
 · 
Reactions

Answer Summary

Members openly discussed how fibromyalgia has significantly impacted their intimacy and sex lives, sharing struggles with pain during and... Read more

Members openly discussed how fibromyalgia has significantly impacted their intimacy and sex lives, sharing struggles with pain during and after sex, chronic fatigue, loss of libido, and the emotional toll of feeling like a failure or burden to their partners. Several members offered practical wisdom, including exploring different positions to reduce physical strain, using vaginal creams for comfort, seeking couples counseling to find a new normal together, and finding alternative ways to express love and intimacy beyond sex, such as cuddling, affirming words, and active listening. A recurring theme was the importance of honest communication with partners, self-compassion in the face of an invisible illness, and remembering that becoming sick is not a personal failing but a reality that requires patience, creativity, and mutual understanding to navigate together.

A MyFibroTeam Member

Of course, when people are married they almost always want a sex life. As a counselor, I noticed that troubles arose when one partner felt like they weren't getting their needs fulfilled, usually from a spouse who was ill and/or overwhelmed. Finding a "new normal" in a sexual relationship takes a lot of patience, guidance, and love on both sides. Marital counselors can help couples (or even couples counselors) get through this. Depending on the state (US) or country, there are clinics that offer these services. I know that sometimes there can be waiting periods to be seen. I wonder if a book has been written about this very subject?

May 26, 2018
A MyFibroTeam Member

Absolutely! For my husband and I we have a very honest relationship. For a variety of reasons having sex is difficult. We talked about what position/positions are the best, what hurts, etc. open communication can do wonders for your marriage. I realized at one point that my husband appreciated cuddling, kissing, and less strenuous types on intimacy. There are others ways to strengthen your bond. Let him know how much you love him, how amazed and impressed with any activity that he does. Tell him how handsome he is. Even if you’re not, pay attention with enthusiasm to what ever information he shares with you. For example, my husband loves guitars. He is a very detailed person and when he wants to share with me I know how very important it is for me to listen, ooh and ahh, and ask questions so he knows I am listening. Male ego is terribly fragile and it needs to often be stroked and tended to. Hope this helps.

May 28, 2018
A MyFibroTeam Member

I came to the Q&A to see if it is just me who has no libido and now dislikes sex, but it seems there are may of us. It is painful in my vagina during and after, and then the pain from me having to take charge because my husband is too tall and overweight to be on top. Its pretty hard being the one in charge when all i want to do is curl up and sleep.

June 2, 2018
A MyFibroTeam Member

Yes it does cuz it hurts to do anything. My husband is understanding bout that tho. There are other ways to show someone you love them

May 31, 2018
A MyFibroTeam Member

Poppa, with this chronic illness there are so many aspects of our lives that it affects. I, probably like almost everyone here have wanted to throw in the towel a number of times. I’ve wanted to hundreds of times. What helps me know is to remind myself that a better day will come and will make me glad that I was here to experience it. I am so very sorry that you are feeling so helpless and alone. I’m praying that this site will offer you some relief and support. We are all in this together and there is strength in numbers. Just know that we are all pulling for you and will always be here for you.

May 31, 2018

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Paterson, NJ

A MyFibroTeam Member asked a question 💭
Chippenham, UK

A MyFibroTeam Member asked a question 💭
Mobile, AL