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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Mission, TX

I know fibromyalgia affects everyone differently but man I feel like I have every ailment or disease in the book. When you google fibromyalgia symptoms I feel like I have every single one! Here is updated list and of course all the symptoms that go with it
Pain throughout body mainly left sided
IBS
GERD/ Gastritis/ Hiatial Hernia
Allergic asthma/ sinus issues
Painful periods/PMS/ Fibrocystic breast’s
IC/ Bladder leakage
Dry mouth/eyes
Anxiety
Interrupted sleep
Eye floaters

The list can go on… read more

May 14, 2018
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Answer Summary

Members connected deeply over the overwhelming number of symptoms that come with fibromyalgia, with many sharing nearly identical experiences... Read more

Members connected deeply over the overwhelming number of symptoms that come with fibromyalgia, with many sharing nearly identical experiences including chronic pain, IBS, GERD, sleep issues, anxiety, sensitivity to light and sound, and neuropathy, among dozens of other daily struggles. Several members expressed frustration with doctors who dismiss their symptoms as anxiety or mental health issues, offer only pills without addressing root causes, or fail to take bloodwork seriously despite positive ANA results or other indicators that something is clearly wrong. A recurring theme was the comfort found in this community, where members finally feel heard and validated after years of being told their extensive, debilitating symptoms are all in their head.

A MyFibroTeam Member

@A MyFibroTeam Member yes, the dry eyes, mouth, sensitivity to light, sound, smells, heat, cold, chemicals, mood swings due to thyroid problems, muscle spasms and pain, neuropathy (that is the worst for me) joint pain, tooth problems, skin rashes, hair loss, hormone fluctuations... the laundry list is extensive for sure in addition to everything posted here. Healthy people have issues dealing with one or three at a time. We don't need to imagine how all of these feel going on at once, yet we are the "crazy" ones with all of these things "in our head". I wish I had an imagination that vast LOL ;)

May 15, 2018
A MyFibroTeam Member

The laws vary state to state in the USA. I say that for our team members from other countries who might wonder what's up here. You're right about fibromyalgia being a virtual laundry list of symptoms. I have all the same ones you have except urine leaking, probably because I haven't had children. More than 30% of the population of women have this problems because of pregnancy. There's also fibro-fog, parasthesia, thyroid malfunctions, dry mouth, sensitivity to extremes in temperature, to noise, flashing lights, inability to regulate ones inner temps, and fatigue. There are more but these are my contribution. Hang in there.

May 14, 2018
A MyFibroTeam Member

Sorry to hear that. Mine was also triggered after pregnancy. My lab work always comes out within normal ranges. The only thing that varies is my WBC but it’s barely out of range. I am also ANA positive for the exception of this last time, but test negative for all autoimmune diseases. I understand your pain. It’s hard to hear nothing is wrong with when your pain is real. I can’t tell you how many times doctors told me it was my anxiety or postpartum. These last three years have been so exhausting.

May 14, 2018
A MyFibroTeam Member

SuzetteC85 & ChristineO
It's almost like you're in my head. I think I know all the symptoms. Then dang gone if more don't pop up. I've had this for 20 years. And I'm still discovering móre things it seems every day.

May 15, 2018
A MyFibroTeam Member

I’m sorry @A MyFibroTeam Member for your struggles. I understand with the drs wanting to just give out medications for everything. If it were up to them I would be on 8 medications. I’m too young for that and each one has its own side affects. I hope you will get the support you need to help you with this. It’s a tough thing to go at alone. In the meantime please feel free to message me or anyone in your team here. We are here to support each other.

May 14, 2018

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