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Chronic Fatigue Syndrome

Chronic Fatigue Syndrome

Has anyone been diagnosed with chronic fatigue syndrome also? If so are there any suggestions to help with it?

A MyFibroTeam Member said:

My daughter was diagnosed with CFS and was prescribed low dose steroid For most people works very well, but long term side effects are expected and that needs to be taken under consideration when you decided to go on steroids. Anyways, for her the steroid therapy is not working and she is learning to pace herself to remain functional. She tried Provigil, keeps her awake but just as tired unfortunately. Exercise is a big no no for her, totally wipes her out even just a few minutes of elliptical or treadmill walk. Most people intuitively tell you just exercise that will give you a "lift" , energy or mental boost all she ever got is dizziness, head ache, sick to her stomach and super tired, in bed for the rest of the day. Before her diagnosis she was trying to build up resistance and tried to exercise (as doctors recommended to her) and never understood how come she is not improving and getting even more sick. Very important to stay away from people who has contagious diseases. Recovery may take an eternity. Her CFS started after a stubborn mono infection many years ago, took a long time to get to the final diagnosis of CFS.

posted over 2 years ago
A MyFibroTeam Member said:

Yeh i was diagnosed with chronic fatigue before i was diagnosed with fibro and i have to say its a balancing game. Do too much and you fatigue then flare, do too little and you get into a rut where you are scared to do anything incase you flare due to your fatigue. So you try to stimulate your mind forgetting you can mentally fatigue and so on. I can only say learn to read your own body, subtle signs will let you know you are overdoing it, fatigue is horrible but predictable unlike fibro which is erratic and unpredictable. So use high energy foods they help, alcohol is a depressant so avoid if you can and smoking try to cut down or stop. I hope this helps.

posted over 2 years ago
A MyFibroTeam Member said:

I have narcolepsy and it has gotten worse since I have had fibromyalgia. I take Provigal to help me stay awake and it works very well.

posted over 2 years ago
A MyFibroTeam Member said:

I've just received this diagnosis. I'm in a long process of weaning off meds given by doctors that didn't understand my conditions while slowly beginning a proper medical regimen for FMS and CFS/ME (plus the other conditions I have). In a few weeks, I'll be ready to regulate my sleep cycle by taking zopiclone for nighttime and a narcolepsy med (I don't know which one yet) for daytime wakefulness. I hope it will help, because right now I have about 4-6 functional hours per day. It's a dreadful situation.

I hope your doctor will help you find out what works for you.

posted over 2 years ago
A MyFibroTeam Member said:

I haven't actually been diagnosed with it as yet.... still trying to treat me for everything else and the doctors only want to deal with one issue at a time which very frustrating... but I have been suffering so bad with fatigue in the last 2 months it's as if I've taken sleep medication it's so bad... I have issues sleeping and have for years... also have sleep apnea.... I can get up and be ready for sleep an hour later... people who have a normal life really have no idea how lucky they are.... but I also think more n more people are suffering from these type of illnesses and i swear it's due to the crap they put in food....

edited, originally posted over 2 years ago
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