We Are Researching Chiari Formation With A Dr. Michael Rosner As Possibility Of Causing Daughter's Fibro. Any Experience Or Thoughts? | MyFibroTeam

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We Are Researching Chiari Formation With A Dr. Michael Rosner As Possibility Of Causing Daughter's Fibro. Any Experience Or Thoughts?
A MyFibroTeam Member asked a question 💭
posted April 8, 2018
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A MyFibroTeam Member

I have Chiari malformation and have never been told it caused my fibro. I do have terrible headaches and suffer from migraines.

posted April 12, 2018
A MyFibroTeam Member

I worked with Dr. John Sampson at Duke Hospital in NC.

posted April 9, 2018
A MyFibroTeam Member

I have had surgery for Chiari In 2002 with included removing skull bone (decompression). I had to have additional surgery in 2007 to remove part of the malformation. I was later diagnosed with Fibromyalgia after additional tests for spinal fluid pressure showed that the Chiari wasnt the cause of my pain, stinging, etc. (2010)

posted April 9, 2018
A MyFibroTeam Member

My husband has a cousin who has both Chiari malformation and fibro. I think she was diagnosed with Chiari first.

posted April 9, 2018
A MyFibroTeam Member

While some symptoms overlap there seem to be no correlation between chiari malformation and FM so far according to studies.
A male family member was diagnosed with chiari malformation, he had no FM symptoms in his mid 30s. Hope this helps a little.

posted April 9, 2018

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