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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Eugene, OR

Has anyone from this group been using this medication?
There has been some promising literature with good results using low dose.
Wud love to hear from others who have had any experience with this.
Thx.
Jagdish

April 5, 2018
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Answer Summary

Members shared their experiences with low-dose naltrexone for managing their condition, with mixed results including one member reporting no... Read more

Members shared their experiences with low-dose naltrexone for managing their condition, with mixed results including one member reporting no benefit while another remains uncertain due to taking multiple medications simultaneously. Several members offered practical support, including sharing the LDN Research Trust website as a helpful resource and noting that one doctor suggested it but needed to research it further before prescribing. A recurring theme was curiosity tempered by caution, with members seeking more information while one raised safety concerns, though no specific evidence of toxicity for low-dose naltrexone was provided or confirmed.

A MyFibroTeam Member

Very dangerous. Look up "most toxic prescriptions" on you favorite search engine.

April 10, 2018
A MyFibroTeam Member

Yes I am taking it. Unsure if its working since I am taking other things too.

April 7, 2018
A MyFibroTeam Member

My doctor suggested it to me last month when I saw her and said she would need to do some research. It has been 4 weeks and in spite of 2 email reminders, I still have not heard back from her. Another person on my team sent me a link to a website that was very informative. I am forwarding it to you. www.ldnresearchtrust.org/what-is-ldn

April 6, 2018
A MyFibroTeam Member

Yes I was on it. Did nothing for me

April 5, 2018
A MyFibroTeam Member

I didn't see anything stating LDN is toxic. Can you send me a link? Thanks!!

October 31, 2018

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