When You Were First Diagnosed Would You Have Found It Helpful To See Someone Elses Life Who Also Had It? | MyFibroTeam

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When You Were First Diagnosed Would You Have Found It Helpful To See Someone Elses Life Who Also Had It?
A MyFibroTeam Member asked a question 💭

I see youtubers who vlog with other illnesses. I find them inforative and uplifting most of the time. And here is a new documentary coming out from a person with chronic phatigue syndrome. Would you have found it useful? Whould you find it intregueing? Would you find it usful now?

posted March 15, 2018
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A MyFibroTeam Member

Yes ... I just read an article from a lady who had fibro cured now because fibro is all in our head and if we dont think about it will all go away. I watched the lady gaga doco but she never mentioned fibro so you had to be a mind reader to know she suffered. Also i dont have a team of doctors injecting me directly into my muscles so i can get though the day. So yes real people real struggles would be nice for a change. This is why i like this site at the end of the day people with fibro understand those with fibro

posted March 16, 2018
A MyFibroTeam Member

I'd like to see a good documentary that showed maybe 3 to 5 people with fibromyalgia and how their lives are. I think it would help people who don't know what it is.

posted March 15, 2018
A MyFibroTeam Member

Yes most definitely! I think it would also b useful for loved ones to view.

posted March 16, 2018
A MyFibroTeam Member

Very much would have been helpful. Especially because I felt like I am crazy with all the weird symptoms and pain. It is hard to believe what fibromialgia can do to people and still cannot be diagnosed properly.

posted March 16, 2018
A MyFibroTeam Member

My mom lived with it so i had first hand experiance living with someone who had it and at the end of her life having her beg for us to let her see her parents and ancestors was heart renching because the medical community couldn't find the correct dodage dosages to control her pain 24/7 like me her pain medication was very limited to what she could tollerate vs actuaĺy have vs cant have at all.

posted March 16, 2018

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