Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Lincoln, NE

At night I get visual trailing where if I wave my hand over a dark surface I see the trail of my hand- like several copies that follow it. It happens with lights and is horrible when driving. I also will see after images of things especially in high contrast. If I go to the movies and look from the screen to the wall I'll see the image briefly that was on the screen. Does anyone else have this? My eyes have been checked and were fine and my neuro says it's probably related to migraines… read more

March 1, 2018
 · 
Reactions

Answer Summary

Members connected over experiencing unusual vision problems like visual trailing, after-images, and light sensitivity, with many confirming... Read more

Members connected over experiencing unusual vision problems like visual trailing, after-images, and light sensitivity, with many confirming these issues are common in fibromyalgia due to nerve and muscle involvement in the eyes. Several members shared specific challenges including difficulty driving at night due to oncoming headlights, frequent prescription changes, dry or blurred vision when fatigued, and trouble reading even with enlarged text. A recurring theme was the importance of annual eye exams, checking medication side effects (especially anticonvulsants), and finding validation in learning that vision problems are a recognized part of fibromyalgia rather than just aging or imagination.

A MyFibroTeam Member

Dry eyes
Tearing eyes
Blurred vision
Double vision
Light sensitivity
Touch sensitivity
Shift of focus issues
Eye pain
Eye pain on moving the eyes
Dizziness
Visual Distortion
Floaters
Flashing lights
Transition, near to far issues
Macular Degeneration
Frequent eye glass changes
Difficulty wearing contacts ( due to touch sensitivity )
Blindness ( in persons with rheumatoid arthritis, a rare condition )
All of the above can occur with or without the most common medications given for FM, but ... they tend to become worse in many cases, due to the medications we are commonly given.

March 1, 2018
A MyFibroTeam Member

Did you know that the eye has six main muscles to control its movement? I certainly didn’t. And because fibromyalgia affects our nervous system, it stands to reason that it will affect our eyes and vision as well.

The nervous system deteriorates in FM patients, so the nerves to our eyes can deteriorate and cause problems. It’s a good idea to get your eyes checked each year. My eyesight seems to keep changing, so I need to keep updating my prescription.

March 1, 2018
A MyFibroTeam Member

I now suffer night blindness so i cant drive at night, im super sensitive to oncoming headlights and on unlit roads i am lost and cant even make out the road direction. This all started a couple of years ago. I cant drive now due to medication and sleep apnea but my driving deteriated as well. My vision blurrs when im fatigued so i just shut my eyes. I cant read books at all now as it fatigues me too much. I cant focus on the words and even my kindle with text size increased to max i still get fatigued. I hope this helps.

March 1, 2018
A MyFibroTeam Member

I knew that Fibro affected the eyes but I didn't know it was to that extent. This explains the majority of the problems that I have with my eyes.

March 2, 2018
A MyFibroTeam Member

If you're on an anticonvulsant may be the problem. I had the same thing when I took them. It was really weird to see my blur into many hands, but stopped when I medications. Eye doctor said my eyes where of also as I thought it might be a detached retina. It could be migraines but check side effects of your meds too. Hope it gets better for you.

March 2, 2018

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Lincoln, NE

A MyFibroTeam Member asked a question 💭
monterrey

A MyFibroTeam Member asked a question 💭
Wausau, WI