When Someone Asks Whats Fibro How Do You Explain Such A Complexed Illness? | MyFibroTeam

Connect with others who understand.

sign up Log in
Resources
About MyFibroTeam
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
When Someone Asks Whats Fibro How Do You Explain Such A Complexed Illness?
A MyFibroTeam Member asked a question 💭

With fibro being so complex i find it so hard when someone asks what it is how to describe it?

posted February 14, 2018
Be the first to like/hug
A MyFibroTeam Member

i tell people it is like the worst flu that they have ever had. Then i tell them multiply that by 10 and have it 24/7. I also say i feel like i have been hit by a mack truck. Lol. A little overkill i know but some days i feel that bad. Most people have had the flu so they kind of understand that comparison. That only covers some of our symptoms but it makes them at least understand the pain and exhaustion. I hope this helps you explain it. Just remember that alot of people will never believe you no matter what you tell them. Hugs

posted February 14, 2018
A MyFibroTeam Member

I tell them it affects you from your head to your toes, from your skin to your skeleton. From taste and feeling sensitivities to intense muscle spasms and achy all over.

posted February 14, 2018
A MyFibroTeam Member

Hi, this is info I received from a pain clinic I attended: it helped me to understand the condition a bit more, and gave me reassurance it is real!

"Understanding of fibromyalgia remains limited, although research suggests that it is primarily a disorder of the central nervous system. Fibromyalgia may be referred to as a central sensitisation syndrome, resulting in pain amplification and other symptoms via a variety of pathways."
Full article https://www.guysandstthomas.nhs.uk/our-services...

And this is a bit more in depth
How to Explain Fibromyalgia - Verywell
https://www.verywell.com › how-can-i-e...

A Simple Explanation of Fibromyalgia - ...
https://www.verywell.com › a-simple-exp...

posted February 15, 2018 (edited)
A MyFibroTeam Member

I tell them it is a neurological disorder that affects many systems which rely on our nervous system. If they are still interested I tell them how my nervous systems affects me by increasing my pain, fatigue, depression and anxiety.

posted February 14, 2018
A MyFibroTeam Member

@A MyFibroTeam Member. I am sorry that you were actually hit by a truck. I just say that i feel that way because i hurt so bad all over. Bad analogy.

posted February 14, 2018

Related content

View All
Do People With Fibromyalgia Get Pain In Middle Of Chest With Radiating Pain In Left And Right Arm
A MyFibroTeam Member asked a question 💭
How To Explain To People
A MyFibroTeam Member asked a question 💭
Doctor In Los Angeles
A MyFibroTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of use and Privacy policy.
Already a Member? Log in