I know this question got asked over a year ago, but I just want to re-flag it. Anyone else experience burning mouth pain from Fibro? Physical therapy has helped me a decent amount (by jumpstarting the nerves with a machine called an "Acuscope") but I am curious what others have done. I've had it for 7 months now and it is the worst pain I've ever felt. I don't take medications other than supplements so I know it's not a side effect. Any help would be appreciated!
I find that foods with vinegar, like dressings and salsa, make it worse. Sometimes even toothpaste with mint. It all seems to be related to food with me.
@A MyFibroTeam Member the only thing that has helped me is "body scan" meditation focusing only on the mouth. it doesn't make the pain go away but it makes the area that is in pain smaller/shrinks the area that is in pain. (for me the BMS affects the gums around my lower front 4 teeth, top front 2 teeth, and sometimes the upper left teeth, especially around an implant tooth i have there). also, i agree with @A MyFibroTeam Member -- i am starting to suspect that mint toothpaste and mint floss irritates it more.
you can have your doctor order a solution called Magic Mouthwash. It is good for burning in the mouth as it has numbing solution in it as well as something similar to Maloxx . You swish a tiny bit in your mouth andit does not taste bad and relieves burning. If you keep getting burning see a gastro doctor to rule out any damage from acid reflux. Also sleep with your head elevated.
Have you tried a gastroenterologist? I was diagnosed with gastritis. I found the bad mouth issues were mostly at night when laying down. My doctor recommended a special diet and I finally settled down with Pepcid after trying different stomach medications. Also, don’t go to bed on a full stomach,
I use a custom made mouth guard from my dentist for the TMJ. Just my experience but might give you some ideas. Good luck.
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