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Do You All Think Dizziness Is A Symptom Of Fibromyalgia?

Do You All Think Dizziness Is A Symptom Of Fibromyalgia?

I have been struggling with Vertigo for a year and a half. And the past 5 months I have had it all day long. I have seen a ENT, neurologist, a balance center DR and none of them could figure out what is causing my dizziness. I went off all medications for a month and nothing changed. I thought maybe my medications were causing the dizziness but I guess not.

A MyFibroTeam Member said:

Hi there!

I had to go off work from the dizziness, shakes, weakness. I didn’t have vertigo where everything was spinning but I get weak and dizzy. I too went to ENT, Dizziness Centre (not my favourite that’s for sure) and neurologist. I was taken off meds and still nothing. I get PEM - post exertion malaise, dizziness- but more like my blood pressure is dropping (which is does more times than not) and I shake. Is yours similar?

posted over 4 years ago
A MyFibroTeam Member said:

I had chronic subjective dizziness (felt out of balance, light headed). People with vertigo feel as though they are actually spinning or moving, or that the world is spinning around them. I am not sure which one you are referring to. I had dizziness for 4 years, it was terrible. I improved very, very slowly and no doctor could help me. I constantly felt disoriented, like the floor is moving under my feet or that I can faint anytime. Dr. Jeffrey P. Staab MD (Rochester, Minnesota) is doing research regarding dizziness/vertigo problems, you may want to read about his findings or treatment recommendations.
I was taking Citalopram (SSRI) based on Dr. Staab findings, however I was unable to take the recommended effective dose because of the side effects, so it did not help me.
I started to do vestibular exercises on my own to help my progress. I am now 90% recovered.

posted over 4 years ago
A MyFibroTeam Member said:

I'm so sorry. I experienced vertigo for the first time about 3 years ago and have had it intermittently since then. It's horrible. Have you tried the Epley maneuver? Some people with BPPV have success with that.

posted over 4 years ago
A MyFibroTeam Member said:

My heart and blood pressure are great. I have had a couple of different EKGs done and the doctors both told me I have a good strong heart. The ENT said I have vestibular vertigo but I didn’t have headaches for the first year of being dizzy. I didn’t get my first migraine until 5 months ago. Then I had migraines every weekend and some weekdays. I believe it was due to a medication. I don’t understand how I can have migrainous vertigo if I didn’t ever have migraines before that. I suffered from those headaches and migraines. Until I went off all of my medications. I am currently trying to take just Cymbalta and see if it will help with my Vertigo and fibromyalgia symptoms. I hope your condition gets better. It’s frustrating to have dizziness.

posted over 4 years ago
A MyFibroTeam Member said:

You sound like me! Ive had dizziness and motion sicknees all day everyday for 18 months now. I had a brain MRI, a heart monitor, and a bunch of blood tests. Saw a ENT and neurologist as well. I too went off all meds thinking those were the culprit-no change in symptoms. It wasnt until i went to a second ENT for a second opinion that she told me she suspects i have vestibular migraines. I had heard if those before but never realized it was possible for someone with no migraine history to develop vestibular migraines- and for them to be every. Single. Day!

edited, originally posted 4 months ago
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