Hi there!

I had to go off work from the dizziness, shakes, weakness. I didn’t have vertigo where everything was spinning but I get weak and dizzy. I too went to ENT, Dizziness Centre (not my favourite that’s for sure) and neurologist. I was taken off meds and still nothing. I get PEM - post exertion malaise, dizziness- but more like my blood pressure is dropping (which is does more times than not) and I shake. Is yours similar?

I'm so sorry. I experienced vertigo for the first time about 3 years ago and have had it intermittently since then. It's horrible. Have you tried the Epley maneuver? Some people with BPPV have success with that.

My heart and blood pressure are great. I have had a couple of different EKGs done and the doctors both told me I have a good strong heart. The ENT said I have vestibular vertigo but I didn’t have headaches for the first year of being dizzy. I didn’t get my first migraine until 5 months ago. Then I had migraines every weekend and some weekdays. I believe it was due to a medication. I don’t understand how I can have migrainous vertigo if I didn’t ever have migraines before that. I suffered from those headaches and migraines. Until I went off all of my medications. I am currently trying to take just Cymbalta and see if it will help with my Vertigo and fibromyalgia symptoms. I hope your condition gets better. It’s frustrating to have dizziness.

Hi, Check out PoTS. It is a symptom that is strongly related with fibro and gives symptoms of vertigo, tachycardia, nausea, painful chest and shoulders, etc., etc. I have been taking Ginko Billoba for it as it is supposed to be 30x stronger than the pharmaceutical Serc for this disorder. Check it out online and best of luck as though Ginko does help me, I have found that PoTS symptoms seem to come back at least every few months.

You sound like me! Ive had dizziness and motion sicknees all day everyday for 18 months now. I had a brain MRI, a heart monitor, and a bunch of blood tests. Saw a ENT and neurologist as well. I too went off all meds thinking those were the culprit-no change in symptoms. It wasnt until i went to a second ENT for a second opinion that she told me she suspects i have vestibular migraines. I had heard if those before but never realized it was possible for someone with no migraine history to develop vestibular migraines- and for them to be every. Single. Day!