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When I was finally diagnosed which I don't believe was a proper diagnosis by a rheumatologist because he said if it's wide spread pain then if I WANT he will diagnose fibro ,he never checked trigger points or even examined me .

January 9, 2018
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Answer Summary

Members shared mixed experiences when asked whether their doctors checked pressure points during fibromyalgia diagnosis, with many describing... Read more

Members shared mixed experiences when asked whether their doctors checked pressure points during fibromyalgia diagnosis, with many describing frustrating encounters where rheumatologists either skipped physical exams entirely, offered vague diagnoses, or dismissed their concerns without thorough testing. Several members emphasized that the outdated 18-point tender test has been replaced by a widespread pain index and symptom severity scale, and stressed the importance of ruling out conditions like RA, lupus, and thyroid issues through bloodwork before confirming fibromyalgia. A recurring theme was that diagnosis often feels like a long, frustrating process of elimination, with many finding better care and compassion from pain management specialists than from rheumatologists.

A MyFibroTeam Member

@A MyFibroTeam Member probably yes. I think I have 4 appointments in total with rhuematology.

January 10, 2018
A MyFibroTeam Member

fibromapp.com/fibromyalgia-18-tender-point-test-inaccurate-unreliable-outdated/

January 9, 2018
A MyFibroTeam Member

@ Kagz, That's horrible. You would have thought they would have done tests to rule out RA, Lupus, thyroid etc... If they were any good they should have. I hope the pain management place does that for you. It's really a process of elimination as you know. I was fortunate because I had given up hope on finding a cause, and he diagnosed me when I was just visiting him for an arthritis update.

January 9, 2018
A MyFibroTeam Member

My doctor tested my trigger points and also did bloodwork on me. I think it is very important that they do that because you might be taking a medicine they prescribe that you dont need.

January 9, 2018
A MyFibroTeam Member

Amzel the gp done a blood test which showed no RA so he just refered me to the rheumatologist ,but gp said it doesnt allways show on bloods,i told the rheumatologist this and he said dont no why your gp had said that lol,i had my thyroids taken out 12 yrs ago now so ano it's not that ,so think we're reaching the end point of elimination I hope,plus it was my gp that suggested fibro in the first place,its all frustrating really.

January 9, 2018

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