Has Anyone Heard Of The Blood Test FM/a? | MyFibroTeam

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Has Anyone Heard Of The Blood Test FM/a?
A MyFibroTeam Member asked a question 💭

Has anyone heard of the blood test FM/a? It's the first and only FDA-compliant blood test for FM. It is a multi-biomarker based test, which analyzes your immune system's white blood count chemokine and cytokine patterns. Patients with FM have an irregular pattern regarding these proteins. If so, has anyone had it done or have any information on it?

posted December 15, 2017
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A MyFibroTeam Member

I have heard about it and most insurance will not cover it and it costs about $700.00

posted December 15, 2017
A MyFibroTeam Member

Now that I have the results, I am waiting on a letter from Campaign 250. Campaign 250 will conduct Whole-Exome genetic testing on up to 250,000 patients who have received a positive FM/a® fibromyalgia diagnosis. Dr. Gillis, with EpicGenetics, emailed me and said that they are awaiting FDA approval regarding the vaccine trial. He said he hopes to receive it in early 2018. They will contact those with positive FM/a® test scores once we have more information. If all goes well I will be one of the first to receive the vaccine next year. This is very promising. I do know that to take the test you cannot take certain medications. Certain drugs, medications and supplements can interfere with the test process. These include steroids, anticancer drugs, anti-organ transplant drugs and any drugs that could affect the body’s immune system, including some that are available over-the counter. I believe you have to wait 30-60 days after stopping these medications to take the test. I believe this also includes flu shots. This summer my insurance company spent over $50,000 on heart tests because I kept having chest pains and becoming so lightheaded that I was almost passing out. My heart, we discovered it perfectly fine. I was having these pains and almost passing out due to breathing shallow which created a carbon dioxide buildup in my body. Then, we put all of the symptoms I've been experiencing off/on for the past 10-12 years, and figured all of my problems such as strange bouts of severe fatigue and body aches could be attributed to Fibromyalgia. This test was confirmation that I could quit searching for the problem and find a solution. In addition to the heart tests I've endured over the past 6 months, I've had gallbladder scans, brain scans, and lung scans, It was maddening to know something was wrong and not know what it was. I do not take any medications for fibromyalgia. I seem to be able to alleviate the symptoms with removing dairy, meat, added sugar, and gluten from my diet. I've also had to work on being aware of my breathing and making sure I'm taking deep, oxygenated breaths. I try to keep stress levels to a minimum and take walks as often as I can. My husband and I have 6 children that range in age from 3-17 so I have to put in my best efforts to make healthy choices so that I can be the best mom I can be for them.

posted December 28, 2017
A MyFibroTeam Member

Hi. I had the FM/a test and received my results last week. It's a 1-100 scale result. 1-50 = not confirmable, 50-80 = confirmable, 81-90 = strongly confirmable, 91-100 = extremely confirmable. My score was a 94. It was a simple blood test. I just filled out their form online and someone called me within 2 days. They verified my insurance information, took my payment by phone (I only had a $300 copay. The rest was covered by insurance.), and they sent the kit to me. It was a very simple process and I would highly recommend it.

posted December 25, 2017
A MyFibroTeam Member

I have heard of it. Medicare covers part of it but my doctor says you don't need that specific blood test. Process of elimination through routine bloodwork, physical exam and the fibro questionere are all you need. So I'm told.

posted December 20, 2017 (edited)
A MyFibroTeam Member

yes it is expensive if you can do it that's good like me I want too but I would feel guilty I don't work an saving the little money I have for my own place. hugs hope u get the help u need

posted December 20, 2017

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