My husband goes through alot with me The one thing noone really talks about is the behavior aspect of Fibro I can get grouchy impatient withdrawn just not a nice person. Nothing makes me happy. This frustrating for him he doesn't think it is the disease he take it as a personal affront to him like i don't love him. He is still learning how to support me and still sometimes makes insensitivity comments or doesn't realize i do things for… read more
You know, I'm so gr8ful that I call on the the Lord Almighty for strength when I am weak. When I start reading the bible (daily). I'm so focus and hungry for His Word that the pains from this illness subsides tremdouly. All honor and Glory to God.
And when I flare up, it makes me sleep the whole day til the next day. This illness is so confusing. What I'm noticing that when the Barometer is high my body flares up. And when there's moisture in the air, worry, stress, eating lots of carbs in one day will trigger the symptoms. I don't own this illness nor does it own me. When I speak about it.. I don't call it (my.....)...many times I praise the Lord, and ask Him to take away or calm the symptoms. For His will to be done. Not my will...I sing worship songs and rebuke theses pains and symptoms in the name of Jesus...He holds me by his right hand carryings me through it all. Hes soo good. Ladies, prayer does help. Lidocaine ointment, and tea tree oil. Applying it on your pain areas. Oh, don't be afraid to be mobile it helps much. Good nite y'all God bless
For me I have blinkers on and I always think of how the fibro affects me both mentally and physically. It sometimes needs someone to point it out to us that our behaviour is actually affecting those around us. My biggest aim is to try and stay as positive as I can and look at all the things I can do and manage, not dwell on what I used to be able to do. Keep your chin up and know that you are loved and supported xxx
@A MyFibroTeam Member Yes they are all symptoms alot of it has to do with the pain we are in. The having to do nothing means you have all the time to beat your self up which makes you just witchy with a b
@A MyFibroTeam Member I agree its not easy for loved ones to love us. I didn't realize how much my attitude and disease affected my husband until he said something like i don't think he does anything right. Made me seriously think
Sadly I have no answer as I feel the same. I have my boyfriend and some of my family who are so supportive and help me through it all, even when Im not nice to be around. We are grieving the loss of our old life, and living in pain everyday. I have found that the more people around me understand fibro (read up/look at articles/show them what others are saying) they can understand why the way we act, but I know I can be a total b***h on bad days and that is not easy for our loved ones to accept xxx