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Has Anyone Been Diagnosed With Fibromyalgia , Had All The Symptoms And Later Found That It's Not Fibro? What Changed The Diagnosis?

A MyFibroTeam Member asked a question 💭
Housotn, TX

If you have been treated for something other than Fibro and after being treated you have pain decrease do you question having Fibro and what does your doctor say? Or is it just a matter of time before you get the painful flare ups again.?

November 20, 2017
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Answer Summary

Members reassured someone questioning their fibromyalgia diagnosis after experiencing lower pain days, with the overwhelming consensus being... Read more

Members reassured someone questioning their fibromyalgia diagnosis after experiencing lower pain days, with the overwhelming consensus being that fluctuating pain levels are a normal part of fibromyalgia rather than evidence of misdiagnosis. Several members shared that their flare-ups are triggered by weather changes, stress, overexertion, and poor sleep, with many describing how seasonal transitions hit especially hard and require an arsenal of heating pads, ice packs, muscle rubs, and other pain management tools. A recurring theme was that fibromyalgia rarely gets undiagnosed but often comes with additional conditions, and while good days bring welcome relief, the flare-ups always return, making it important to enjoy the better moments without doubting the underlying diagnosis.

A MyFibroTeam Member

Since I quit work my pain is at a much lower level. For me the fall to spring months are what causes most of my pain. Weather changes, rain, fog, weather fronts. I live in Fla. And right now its cool in the morning & nite beautiful during the day. So wake up tight and hurting. Then as day goes on feel better. Then nite comes I get tight and hurt again. A rollercoaster ride. Today rain coming from the west and the south double whammy. All day thing. Hugs and prayers to all

November 21, 2017
A MyFibroTeam Member

Hi, no I haven't. As far as I understand all the people using this site have fibromyalgia; plus additional conditions. My understanding is that fibro may be linked to chronic fatigue, IBS, depression and many other symptoms, but I've not heard of fibro ever being Un-diagnosed. Have you got a particular concern of something else?
Fibro pain may be controlled with the right pain meds, but stress, shock, cold weather, over doing things, poor sleep can all bring on flare ups for me.

November 21, 2017 (edited)
A MyFibroTeam Member

My initial diagnosis was fibro and I have found out I have many more things afterwards. The meds help but I still get flare ups and I have chronic pain from other issues on top. When you feel like a truck ran you over and you have the flu at the same time, that's fibro. I've had it a long time but didn't know what it was. My flares are brought on by stress, weather, lack of sleep and over exertion. Possibly food too.

November 24, 2017
A MyFibroTeam Member

For me it comes in waves. I do have the odd month that im in relatively low pain but aventually i have another flare up. When ive been exercising and eating the right things its longer between my flare ups. And in the past I have questioned weather it was fybromyalgia or not but I always get ill again.

November 21, 2017 (edited)
A MyFibroTeam Member

Have never been told not fibromyalgia just keep getting added to it.

November 21, 2017

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