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I Was Diagnosed Two Weeks Ago, Trying To Learn More About This Disease. Are My Symptoms Common?

A MyFibroTeam Member asked a question 💭
Cincinnati, OH

Hi! This is my second time posting, I am new to being diagnosed and this website! This post is long and I would be so appreciative if you took the time to read it (or skip to the bottom to read my questions.)

I was diagnosed two weeks ago and I am having a lot of “do I really have fibromyalgia?” thoughts because my symptoms come and go. I know that is the nature of fibromyalgia, but since I was recently diagnosed and I am only 20, I just have so many questions.

When I was diagnosed, I think… read more

October 8, 2017
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Answer Summary

Members overwhelmingly validated someone newly diagnosed with fibromyalgia who questioned whether their diagnosis was real because symptoms... Read more

Members overwhelmingly validated someone newly diagnosed with fibromyalgia who questioned whether their diagnosis was real because symptoms came and went, with the resounding consensus being that fluctuating pain levels, good days mixed with bad days, and questioning your own illness are all completely normal parts of the fibromyalgia experience. Several members shared that their own fibromyalgia started with milder, intermittent symptoms in their twenties and gradually worsened over years or decades, with flares triggered by stress, overexertion, or traumatic events like car accidents or surgeries, and many emphasized the importance of pacing yourself, resting without guilt, and listening to your body before it forces you to stop. A recurring theme was the relief of finally being believed and validated by others who understand, with members encouraging the newly diagnosed person to trust their experience, seek support from the community, and know they are not alone or making it up.

A MyFibroTeam Member

I have been in pain since childhood. It was mild and bearable until about 3 years ago and I am now 36yrs old. It has definitely got worse. My advice is keep moving and rest when you need to. I have flares that last months compared to 1 or 2 days in the beginning.

October 8, 2017
A MyFibroTeam Member

Mine started like that but has gotten worse over time and if I do to much I usually pay dearly with flare ups for the next few days. It is a crazy diagnosis to figure out as it can change daily on me.

March 9, 2018
A MyFibroTeam Member

It is all very normal what you are experiencing and yes it does seem to get worse the longer you have it. I have good days but you learn what you can do and what you can’t real fast sometimes I pay dearly the next few days if I over do it. This is not fun at all I am so sorry to hear you have this at such a young age I will be praying for you 🙏🏻

October 12, 2017
A MyFibroTeam Member

Does are some of the feelings. They come and go. I'm like that I want to say 2 days I don't have it and then it hits me and put me down.

October 11, 2017
A MyFibroTeam Member

Sounds very similar to my story. Today is my first day on this site. My symtoms have been going on for about 7 years but they only show up about 3 times a month and last from a few hours to 2 days. My doctor is calling it a "Form of Myalgia" she seems hesitant to call it Fibromyalgia. I dont want to take meds so i dont care what she calls it. But when the symtoms show up ever single solid cell in my body feels like a bruise. My clothes hurt on my skin and my mind will not focus on any small task. I could go on and on. I need support too!!

October 10, 2017

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