Hi! This is my second time posting, I am new to being diagnosed and this website! This post is long and I would be so appreciative if you took the time to read it (or skip to the bottom to read my questions.)
I was diagnosed two weeks ago and I am having a lot of “do I really have fibromyalgia?” thoughts because my symptoms come and go. I know that is the nature of fibromyalgia, but since I was recently diagnosed and I am only 20, I just have so many questions.
When I was diagnosed, I think… read more
I have been in pain since childhood. It was mild and bearable until about 3 years ago and I am now 36yrs old. It has definitely got worse. My advice is keep moving and rest when you need to. I have flares that last months compared to 1 or 2 days in the beginning.
Mine started like that but has gotten worse over time and if I do to much I usually pay dearly with flare ups for the next few days. It is a crazy diagnosis to figure out as it can change daily on me.
It is all very normal what you are experiencing and yes it does seem to get worse the longer you have it. I have good days but you learn what you can do and what you can’t real fast sometimes I pay dearly the next few days if I over do it. This is not fun at all I am so sorry to hear you have this at such a young age I will be praying for you 🙏🏻
Does are some of the feelings. They come and go. I'm like that I want to say 2 days I don't have it and then it hits me and put me down.
Sounds very similar to my story. Today is my first day on this site. My symtoms have been going on for about 7 years but they only show up about 3 times a month and last from a few hours to 2 days. My doctor is calling it a "Form of Myalgia" she seems hesitant to call it Fibromyalgia. I dont want to take meds so i dont care what she calls it. But when the symtoms show up ever single solid cell in my body feels like a bruise. My clothes hurt on my skin and my mind will not focus on any small task. I could go on and on. I need support too!!
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