I Was Diagnosed Two Weeks Ago, Trying To Learn More About This Disease. Are My Symptoms Common? | MyFibroTeam

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I Was Diagnosed Two Weeks Ago, Trying To Learn More About This Disease. Are My Symptoms Common?
A MyFibroTeam Member asked a question 💭

Hi! This is my second time posting, I am new to being diagnosed and this website! This post is long and I would be so appreciative if you took the time to read it (or skip to the bottom to read my questions.)

I was diagnosed two weeks ago and I am having a lot of “do I really have fibromyalgia?” thoughts because my symptoms come and go. I know that is the nature of fibromyalgia, but since I was recently diagnosed and I am only 20, I just have so many questions.

When I was diagnosed, I think… read more

posted October 8, 2017
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A MyFibroTeam Member

I have been in pain since childhood. It was mild and bearable until about 3 years ago and I am now 36yrs old. It has definitely got worse. My advice is keep moving and rest when you need to. I have flares that last months compared to 1 or 2 days in the beginning.

posted October 8, 2017
A MyFibroTeam Member

Mine started like that but has gotten worse over time and if I do to much I usually pay dearly with flare ups for the next few days. It is a crazy diagnosis to figure out as it can change daily on me.

posted March 9, 2018
A MyFibroTeam Member

It is all very normal what you are experiencing and yes it does seem to get worse the longer you have it. I have good days but you learn what you can do and what you can’t real fast sometimes I pay dearly the next few days if I over do it. This is not fun at all I am so sorry to hear you have this at such a young age I will be praying for you 🙏🏻

posted October 12, 2017
A MyFibroTeam Member

Does are some of the feelings. They come and go. I'm like that I want to say 2 days I don't have it and then it hits me and put me down.

posted October 11, 2017
A MyFibroTeam Member

Sounds very similar to my story. Today is my first day on this site. My symtoms have been going on for about 7 years but they only show up about 3 times a month and last from a few hours to 2 days. My doctor is calling it a "Form of Myalgia" she seems hesitant to call it Fibromyalgia. I dont want to take meds so i dont care what she calls it. But when the symtoms show up ever single solid cell in my body feels like a bruise. My clothes hurt on my skin and my mind will not focus on any small task. I could go on and on. I need support too!!

posted October 10, 2017

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