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Do You Get Bad Headaches?

A MyFibroTeam Member asked a question 💭
Newcastle Upon Tyne, UK

I am on gabapentin but I’m finding that I get a blinding headaches everyday. Do any of you get these they often turn into migraine with bad light sensitivity?

October 8, 2017
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Answer Summary

Members shared varied experiences with gabapentin and headaches, with some finding that the medication reduced their migraines while others... Read more

Members shared varied experiences with gabapentin and headaches, with some finding that the medication reduced their migraines while others experienced worsening headaches or rebound effects when doses wore off. Several members offered practical strategies that have worked for them, including Botox injections that provided relief for months, tinted glasses for light sensitivity, nerve block shots lasting one to three months, and gradually adjusting to gabapentin dosages to allow the body to acclimate. A recurring theme was that fibromyalgia often comes with severe migraines independent of medication, that individual responses to treatment vary widely, and that members encouraged advocating with doctors to find alternative solutions without sacrificing effective pain management.

A MyFibroTeam Member

There is a chance that it could be a rebound headache as he medication begins to ware off—this is common with several meds even ibuprofen. Did it start after you started the med or before?

October 8, 2017
A MyFibroTeam Member

Yes. I've had light sensitivity and photophobia from childhood, I frequently get quite agonizing migraines. They can become worse around that time of the month as well. But I do experience them when I'm not in that month. Most fibromyalgia symptoms can heighten around a period.

I'm not personally taking gabapentin right now, though I've heard very good things about it lessening the symptoms and helping ease quality of life. I think people react to medications differently. Someone else taking this will be able to advise you.

I can say that with other medication I've taken or been prescribed, I've still had the migraines when I've stopped taking it. So in my case, I think it's simply more a symptom of fibromyalgia, rather than medication influencing the migraines. Though all medication has side effects.

In scientific research fibromyalgia and severe migraines have been noted, just like symptoms of IBS.

There are medications available for migraines though they are all very different.

If you have time, I would take a look at the page I've put a link to at the bottom of this message.

I posted this a while ago for someone who had problems at work with the lighting and light sensitivity. Some people wear tinted glasses in the workplace to cope with the lights and migraine-like headaches. It discusses the neurological implications of migraines and light sensitivity and will provide you with more detailed information. I hope it helps you.

https://www.theraspecs.com/blog/neurological-im...

October 8, 2017
A MyFibroTeam Member

I don’t have any problems taking it so I would tell Dr to try something else

October 12, 2017
A MyFibroTeam Member

Some times i get a head ache bad it fells like a hangover headache that's when i know its fhrom the pain meds

October 9, 2017
A MyFibroTeam Member

I have migraines every day. I now get Botoxand it has totally taken them away which I am so grateful.

October 9, 2017

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