I just wanted everyones opinion on wheher or not fibro is progressive. For me personally it has felt over the past four years it has gotten worse. I feel like the length of time I'm in pain is longer while the time I feel good has shortened.
I don't care what any doctor or book says, Fibro definitely gets worse as time goes on!! You think it can't get any worse than how you are feeling, then something else starts aching or burning and you curse yourself for thinking that! Years ago, I could walk my dog twice a day and for very long walks!! Now I rarely go for walks and can barely get through grocery shopping. I'm not sure if it's cause I don't have my dog anymore which used to make me get out or if I really have gotten so bad? I know other things have progressively gotten worse so I'm sure it's the latter of the two!
@A MyFibroTeam Member It certainly feels progressive, although it is not considered to be. I used to have periods/flare-ups and feel well again. I would get back to jogging etc. Until three years ago it's been every single day i have just been getting worse with symptoms. There has not been a day since then that i have felt ok.
It is not progressive. Retired nurse here. You get a certain way and that is what it will be forever. Keep in mind though as you age some may feel worse but this is just normal aging process.
Medically it isn't processive however do to it wearing your system down it can make it feel like it is because it wears away your ability to cope as you once did.
When I first came across info on fibro and CFS and spoke to a GP the info is fibro happens as flares ups which certainly didn't last years. I thought well because I've been ill constantly for three years, it can't be fibro - it must be something else. Although I didn't connect that prior to this period what I was experiencing was probably flare-ups (to a much lesser severity) followed by low mood or sometimes depression.
It wasn't until I was experiencing eye and ear problems, vomiting, nausea, dizziness, vertigo, IBS, sensitities, exhaustion that I started regularly going to see my GP in a state asking (begging) GP's to take it seriously. I had spoken about flu-like symptoms, pain, fatigue countless times before but I was told to take supplements since I kept getting the 'flu' every couple of months.
I was also told from GP my symptoms were depression, anxiety (which I couldn't understand as I was feeling happy for years and was working towards goals and was very hopeful for the future). I felt in control of my mood. Also I was told my symptoms are because I am woman, a mother etc etc. Then as soon as fibro was mentioned it is psychosomatic illness. I did a a huge amount of research and was convinced it was fibro or CFS.
Sorry a long story - my point is that information on health websites, like NHS, and information from health professionals should include that people's symptoms can progress and they may not longer exp flare-ups and also the range of symptoms. I'm glad I did more research online and joined online communities. That's been the most helpful