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October 5, 2017
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Answer Summary

Members shared their frustrations with finding pain management in Portland and Eugene, where some specialists refuse to treat patients using... Read more

Members shared their frustrations with finding pain management in Portland and Eugene, where some specialists refuse to treat patients using marijuana or require choosing between opioids and cannabis. Several members described deeply troubling ER experiences where they felt judged as drug-seeking rather than receiving proper care, with one member recounting dangerous medication errors despite documented allergies and another expressing such distrust they'd rather avoid hospitals entirely. A recurring theme was the call for individualized treatment that recognizes not everyone needing pain medication will become addicted, the legitimacy of marijuana and CBD as pain management tools, and the importance of finding compassionate doctors who truly listen to each patient's unique circumstances.

A MyFibroTeam Member

I agree with you about the cbd and the fact I need pain relief so I can still work in a high stress job. You can see that you are not a drug addict because you have have to talk clearly and with whatever med you take to make it through the day and be clear about that day and what people are telling you instead of not being able to follow a conversation that is simple

October 6, 2017
A MyFibroTeam Member

Not everyone who needs to take a narcotic will
Become an addict.
Also if u use marijuana for pain, you are also not addicted.
I am choosing to use marijiana & or Cbd for pain other than vicodin.
Having said that, when my pain has been a 10, I have taken it. Do I use it often, no.
I think they need to look at each individual & not assume.

October 5, 2017
A MyFibroTeam Member

@A MyFibroTeam Member, I will make you a deal. Next time you are feeling sick, drive on down to Utah and I will take care of you. And I promise I won't run away so you can give me that kick in my butt with your cowboy boot you've been dying to do! Deal?
xxxx

October 5, 2017
A MyFibroTeam Member

You are 100% correct. I had to go to ER once, and the dr came jn and asked, Do you have a place to live?..I looked at him, I gave my apt address., Do you have anyone that lives with you?...My service pup live alone just fine. Thank you....Are you really in pain or have you a medication issue as I see you have tried a number of pain medications.
😐
I told him if he had REALLY READ my medical history he would see THEY ARE ALL MARKED AS NOT BEING USED AFTER THE FIRST TRY DUE TO A REACTION THAT SENT ME TO ER.
And no, I am NOT taking ANY pain medication with 106 reactions to meds.
He said he was going to give me 1 shot of morphine then I could go home.
I said, NO! I pulled down my shirt to show my triple bypass scar and asked...Don't you know a heart patient CANNOT be given morphine?! DID you read my medical history?

I just got up and signed out.

I've told my friend, DO NOT take me the hospital until I've been dead 3 days.
He laughed but I'm serious.
Just get GA somewhere safe, if she still with me, and leave me alone.
Last time I went jn with half my face swollen with an unknown infection, rather than test for it, they gave me a broad spectrum of antibiotics and I ended up with C Diff. My insides were fighting as it was and they basically killed what was left.
Yet they judge everyone who comes in ER as homeless and a looking for pain meds.
I'm terrified of trying any new med even if it's not for pain, and so is my NP. She knows I'll not come see her unless it's another infection. I have an antibiotic at home just in case I find another lump that starts changing size so I can try to catch it, then head to her. I made the choice her and I will try fighting it alone first, if it get to where I know it's not working, I call her, she calls hospital & admits me under MRSA again. I have had it twice and the infectious disease specialist said I'm a carrier, but not contagious, and I'll always be at risk, but he agrees with how we're doing things. He also knows I've nearly died from hospital people giving me what is on my DO NOT GIVE list and he wrote on my medical history to CALL HIM BEFORE GIVING ANYTHING INCLUDING SALINE. Yet no one reads it, thinks I'm a druggie. So no, I will not go to ER unless I'm dead first. Beat them to it.
So what is left to us? When my pension comes in, I'm going to try CBD oil one more time, but then I'm done. Prayer, tears and pain are with me every day. He gets me thru every time. So I can do this.πŸ’œ

October 5, 2017
A MyFibroTeam Member

Also I live in Eugene Oregon & the pain specialist here doesn't agree with seeing patients who use marijuana because he can't prescribe narcotics.
Seems very twisted to me.
I know there is an Opiode crisis but it doesn't serve everyone.

October 5, 2017

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