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A MyFibroTeam Member asked a question 💭
Kissimmee, FL

I have nodules under my skin everywhere throughout my body. They are all over my abdomen, in between my thighs, on the side of my hips, and under my under arms. I can't sleep on my sides because it hurts. These swellings feel like subcutaneous nodules. Is this a fibromyalgia symptom? They keep telling me it's just the Lupus, but that is not a Lupus symptom from what I understand ☹. I feel like I have the flu ☹.

September 17, 2017
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Answer Summary

Members shared experiences with painful subcutaneous nodules throughout their bodies, a symptom the original poster questioned as potentially... Read more

Members shared experiences with painful subcutaneous nodules throughout their bodies, a symptom the original poster questioned as potentially fibromyalgia-related despite being told it was lupus. Several members identified these lumps as lipomas, benign fatty tumors that are common in people with fibromyalgia and can cause significant pain when pressure is applied, unlike in the general population where they are typically painless. A recurring theme was frustration over doctors dismissing concerns and the relief of finding others who validated this underrecognized symptom, with practical mentions of medications like Lyrica helping manage associated pain.

A MyFibroTeam Member

And @A MyFibroTeam Member lipoma I've had 11 removed from my lower back on 2 different occasions. They are a fatty tumor, non cancerous but if pressure is put on them, they have a hot burning pain. The lipomas I had removed were 3" long or deep into my back (not what the Dr or the surgeon was expecting) by 3" by 1" in size. I first had 6 removed in March of '93 and they grew back in the same exact place and I had 5 removed in September of '93. My surgeon rold me to pray they dont come back because I wont be able to be cut on there again. I went for years without a reoccurrence until 2014 when two came back. Due to the amount of scar tissue and the location -- no surgeon will touch them and I've been to 3 to ask. I had read an article a couple years ago about lipomas being common in people with FM. You might want to Google that to find out more about it.

September 18, 2017
A MyFibroTeam Member

Hi @A MyFibroTeam Member, I also have lupus and am experiencing the exact same thing. I have small, oval-shaped nodules all over my lower abdomen. They biopsied one and told me it was a lipoma. Apparently, most people don't have pain from them, but it seems like people with fibromyalgia do. This is a very under recognized symptom, I think.

December 16, 2019
A MyFibroTeam Member

@A MyFibroTeam Member Yes me 2...It gets so frustrating for doctors not to be able to give you a straight answer.

September 17, 2017
A MyFibroTeam Member

I have them also but nobody will listen to my concern. They are all along my ribs and pelvic bone and painful to touch.

September 17, 2017
A MyFibroTeam Member

I personally have never heard of nodules with fibromyalgia until now.

September 17, 2017

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