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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Ipswich, UK

Hi everyone, this question has been asked but there were now answers. This happens to me fairly often. My tongue feels as if it's too big for my mouth, my back teeth rub against it's sides and feel really sharp and jagged (although they're not of course) and I have kind of cratered lines and ulcers along the sides as a result. I can't think what it could be. I do suffer with a very dry mouth and have to drink all the time. I do suffer with oral thrush occasionally when I'm run down too. Please… read more

August 30, 2017
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Answer Summary

Members shared their experiences with the frustrating symptom of a swollen tongue and dry mouth, with many relating it to medication side... Read more

Members shared their experiences with the frustrating symptom of a swollen tongue and dry mouth, with many relating it to medication side effects, dehydration, or fibromyalgia flares. Several members offered practical strategies including sipping water frequently, using sugar-free candies or gum to stimulate saliva, and checking blood sugar or thyroid levels to rule out other underlying conditions. A recurring theme was the connection to Sjögren's syndrome and the hope that a treatable cause like thyroid issues might explain the symptoms.

A MyFibroTeam Member

I know I am going to spell this wrong but Srogren's syndrome does this to your mouth. I get ulcers in my mouth from time to time when I am in a fibro flare.

August 31, 2017
A MyFibroTeam Member

Have you checked your blood sugar lately? I also get this problem in my mouth from time to time. I am diabetic, so my doctor checked my blood sugar, but it was fine. She said since she'd ruled that out, then it was the Fibro. She told me she could give me a prescription gel to keep my mouth moist, but it wasn't that great and it tasted vile. So now I just sip water and if I'm out I pop a little sugar free sweet ( like a Lifesaver) in my mouth to ease the dryness.

August 31, 2017
A MyFibroTeam Member

I have had it before but months apart from each other. No new meds. Xx

August 31, 2017
A MyFibroTeam Member

Is this a new symptom? Or has it been going on for awhile? Have you started any new medications recently?
I've had something similar to the extreme a long time ago and it was an allergic reaction to a medication I was taking! I also recently had a similar situation...but very mild..and I was told it was a side effect of starting Gabapentin...after being on it consistently for 2 months it went away!

August 30, 2017
A MyFibroTeam Member

I get this as well. I also suffer from dry mouth. I wear a partial n find that I am always pressing my tounge to the roof of my mouth. When not wearing my partial, I feel like my tongue has no room in my mouth.

August 30, 2017

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