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A MyFibroTeam Member asked a question πŸ’­
Battlefield, MO

My urine culture came back as negative again. I was diagnosed with Interstitial Cystitis months ago. Can flare ups cause you to be bedridden for weeks? I'm absolutely miserable.

August 3, 2017
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Answer Summary

Members connected over the severe impact of interstitial cystitis flares, with many confirming that yes, flares can absolutely cause someone... Read more

Members connected over the severe impact of interstitial cystitis flares, with many confirming that yes, flares can absolutely cause someone to be bedridden for weeks or even months, often accompanied by relentless bathroom trips, burning pain, and extreme discomfort. Several members shared practical strategies including eliminating trigger foods like coffee, citrus, chocolate, and spicy items from the diet, using over-the-counter relief products like Cystex Plus or AZO, and consulting with a urologist to adjust medications or explore other treatment options. A recurring theme was the deep emotional toll of chronic pain and the critical importance of leaning on community support, staying connected through honest conversation, and seeking professional help during the darkest moments rather than suffering alone.

A MyFibroTeam Member

I would suggest calling your doctor and see if he/she can change any meds you are on! And I don’t believe that suicide is the answer. My older brother did about 10 years ago and his passing left nothing but devastation in its wake. Our family has never completely recovered, even now.
Please call your doctor!

Hang in there ~ you are far stronger that you give yourself credit it.

Good Luck & God Bless! ! !

Linda
πŸ•ŠπŸ’œπŸ•Š

November 24, 2017
A MyFibroTeam Member

Hi..i can't imagine being bed ridding... I also don't know what that is exactly!! I'll have to look into that some more.... I'm sorry for what you are going through... I know the feeling , about not being in control of the situation... I will talk to you son.... Sleep well my friend....

August 4, 2017
A MyFibroTeam Member

What you can do is come to this site and talk. Talk a lot. We are all in this together and no one understands but us. So we can help you as we help each other. As you help us.
I'm so very sorry you are going through some hard days. But please don't give up on yourself. You are someone's daughter and I'm sure you are loved very much. And you are our sister. And sisters never give up on each other. Count me in for team @A MyFibroTeam Member.
xxxx

August 3, 2017
A MyFibroTeam Member

@A MyFibroTeam Member

πŸ€—πŸ€—πŸ€— darling It is horrible to be bedridden and in pain. We totally understand that it can push you over the edge and have suicidal thoughts.
The thoughts, the pain will pass, I don't know when. Just take it day by day hour by hour. We are all with you. Is this the worst you have ever been ?? If it's not then remember the times when it has been & you got thro that. You are a strong brave lady. Your body is hurting and needs healing so treat yourself with compassion and kindness. Destructive thoughts are not beneficial or helpful. I wish you well. Xxx

August 3, 2017
A MyFibroTeam Member

@A MyFibroTeam Member Lifestyle. Lifestyle factors can affect the IC patient. Certain foods or beverages can exacerbate symptoms of IC. Some of these items include:
Coffee and tea;
Carbonated drinks;
Alcohol;
Tomatoes;
Vinegar;
Spicy foods;
Chocolate; and
Citrus fruits and other fruits (such as apples, bananas, and tomatoes) and onions
As for the flares, it really depends on the individual it can actually last a few months. Hugs

August 3, 2017

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