Answer Summary

Members shared widespread experiences with pins and needles and numbness in their hands and feet, with many describing it as one of their... Read more

Members shared widespread experiences with pins and needles and numbness in their hands and feet, with many describing it as one of their earliest symptoms that persists over time, often accompanied by sharp pains, finger locking, and difficulty with daily tasks like driving, reading, or walking long distances. Several members discussed potential causes and strategies, including testing for carpal tunnel (which came back negative for some), trying stretching exercises, physio and trigger point work on the hips, taking magnesium, wriggling fingers for relief, and consulting healthcare teams about conditions like Raynauds, though most admitted that nothing seems to truly help. A recurring theme was the frustration and sense of shared solidarity around managing yet another unpredictable and painful aspect of living with their condition, with numbness worsening throughout the day, during certain activities like typing, or in specific positions at night.