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About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Ever Wonder If Your Diagnoses Are Correct?

Do You Ever Wonder If Your Diagnoses Are Correct?

I have been diagnosed with fibro, me/CFS and POTS, with me/CFS being the worst. I still manage to somehow function and raise my children, though extremely limited. I have had neighbors and family say that getting old is hard business (mind you I'm 30). I sometimes stop and wonder if really I could just "snap" out of this and maybe it is a mental issue. I know what I'm experiencing is real. And I most of the time am emotionally resilient. But sometimes when I am pacing I wonder, maybe I'm setting… read more

over 5 years ago
A MyFibroTeam Member

Thank you all for your comments! Helps me realize I'm not alone, not too crazy! I agree that being negative or dwelling had a huge effect on the symptoms! And so I every day meditate, serve somebody else, and have a thankful journal/prayer journal, to help keep me going. I just started my own Wordpress account with some writings that have been published. All those things help me deal with the awful reality. But, some days, I question everything. I am grateful for you all. So glad to have fibro friends who understand!!! Love to you all!

over 5 years ago
A MyFibroTeam Member

People who may have fibromyalgia are very likely to have other co-existing conditions which crossover the symptoms of fibro. I am convinced that our mental state has a huge influence on the severity of the symptoms we suffer and keeping busy is better than laying in bed all day - hard to do I know, but helps take you mind off how dreadful you may feel. Since joining MyFibro I have come to realise how much worse others seems to suffer compared to me, and that in turn makes we question whether my diagnosis is accurate. I have many of the symptoms related to fibro, but because I know the nervous system is out of balance with fibro, I acknowledge that nerves and anxiety can trigger all kinds of unwell feelings throughout the body and really mess with your mind. I wish there was a conclusive test that would prove whether the diagnosis is correct.

over 5 years ago
A MyFibroTeam Member

You are not old and it is very real keep up the pacing and try mindfulness it's great really helps you just have to rejust your life it's hard but it can be done I have CFS as well and I have damage to my frontal lobe so my short term memory is very bad some day but I have fantastic support from all my family and my grandchildren are brilliant so don't lose heart look after yourself god bless

over 5 years ago
A MyFibroTeam Member

Tuatara31, I'm the same as you & very thankful I don't suffer like some do. Conclusive testing would be great as I feel that I'm a fraud on occasions but then my body tells me otherwise especially if I have a full day of activity, which I do try to avoid.

over 5 years ago
A MyFibroTeam Member

Sorry to hear you are suffering so much but sadly their is no snapping out of it you are doing a fantastic job raising your family just remember we are all here for each other and did doesn't Mather what age you are pain and suffering is still the same at any age take good care of yourself and be kind to yourself as well ♥️

over 5 years ago

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