I have to have hospital appointments often and it has become a way of life,but I'm feeling ignored ,even if I happen to have an appointment which is not to do with my fibromyalgia ,no one says how did it go , or I hope it goes well,it's as if there fed up and they don't care ,I feel quite upset and ignored .I always wish them well if I know they have appointments .
It means a lot when people wish you a good appointment and ask How did it go?
Do you go ahead and tell them anyway or keep it in?
You really can only imagine they are fed up or don't care. Feeling upset and ignored probably doesn't help you and your condition.
This is something I would talk with my counselor about: My issues with being unheard, forgotten, not cared for, plus practicing better communication, managing hurt feelings, and putting self support first. Maybe you would benefit from Cognitive Behavioral Therapy too?
Then there are the results and loaded issues with the appointments themselves. You know you can talk away here. :)
I have experienced this for many, many years. Because the Dr's were unable to explain some of my symptoms, my family decided my problems were either in my head or I was just faking. I have also been told my small pain doesn't compare to their's. I have literally had to walk away from my family. They never provided any type of emotional support and only make me feel worse. The only reason I have ever been thankful for having fibro, is that I never treated my young daughter that way when she was diagnosed with it 4 years ago. I find that even most of my friends do not truly understand nor have a desire to do so. I now have an understanding of others I never thought possible. So, I am very thankful for this site and the support I have found here. I have been encouraging my daughter to join it also.
@A MyFibroTeam Member. Omg hun how awful for u. Your daughter is super lucky to have you n that u understand is in some ways good but in a lot of ways bad if u know what I mean? Hope yr daughter joins soon too. Lots of gentle hugs hun