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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Belcamp, MD

Hi there! I am newly diagnosed with FM and not sure what to make of it yet. I have so many things going on with me that I just can't accept the fact that I've been slapped with the FM label just yet. My symptoms are similar to FM symptoms but I have other things happening that are making me question whether or not I really have it or not. I am to see a Rheumatologist and have an appointment made but the list is limited around me. (apt is in August) I am finding that the more I talk to people… read more

March 23, 2017
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Answer Summary

Members rallied around someone newly diagnosed with fibromyalgia who questioned whether the diagnosis was accurate or simply a catchall label,... Read more

Members rallied around someone newly diagnosed with fibromyalgia who questioned whether the diagnosis was accurate or simply a catchall label, with many sharing their own journeys of demanding comprehensive testing to rule out conditions like lupus, Lyme disease, rheumatoid arthritis, and MS before accepting their FM diagnosis. Several members described how thorough blood work, sleep studies, and visits to both rheumatologists and neurologists helped confirm fibromyalgia while also uncovering coexisting conditions like osteoarthritis, degenerative disc disease, and psoriatic arthritis. A recurring theme was the importance of trusting your instincts, advocating fiercely for complete testing when something feels off, and finding validation in a community that understands the frustration of an invisible and often misunderstood illness.

A MyFibroTeam Member

I was diagnosed many years ago when I along with most of the rest of the population had never heard of fibro. I searched high and low to find any info on it I could. The lack of info helped my husband label me as hypochondriac. They may still not knowingly have a cause for it, but at least it is now recognized as a disease, instead of an absence of disease like it was when I was diagnosed. FM is in all actuality a combination of many symptoms and illnesses. I didn't realize how common the symptoms were until joining this sight!i wish all of our doctors could observe this sight to understand just what we are going thru!

March 24, 2017
A MyFibroTeam Member

What I was trying to get to was that I think they will try to rule out ms while making your diagnosis.

April 1, 2017
A MyFibroTeam Member

My primary care doctor diagnosed me using the pressure point system, which is not currently considered accurate. However, the diagnosis made sense, the more I read. I had it confirmed at Mayo Clinic, where they said I was a poster child for fibromyalgia. You could get a second opinion or just read a lot about it and see if your symptoms mostly fit. I do not have all of them, but I have enough so that it doesn't sound like any other thing I've heard about. I have never been prone to depression, and I don't have that, which is so common.

March 30, 2017
A MyFibroTeam Member

Carrie, I have found that both are good at treating fm, although the rheumatologist will usually ask if a neurologist described your fm or your family dr. Mine have accepted it when my answer is yes, and then proceed to treat me.

March 27, 2017
A MyFibroTeam Member

I have learned that know one knows me as well as I do Trust your instincts and don't think you are crazy You just know. Let me know what u decide

March 25, 2017

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