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A MyFibroTeam Member asked a question 💭
London, ON

I have seen quite a few ppl on here posting about massage therepy and how well you all feel after. I am looking for any people with this symptom (Alidonia) (pain to touch, painful skin) that have or continue to use massage therepy as treatment. I would love to try massage therepy but I am terrified of the being touched and rubbed and worked on that would take me days and days and days to get over. If anyone could ease my fears or let me know how they can get and get through these kinds of… read more

January 29, 2017
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Answer Summary

Members shared mixed experiences with massage therapy while managing allodynia, with many finding that traditional massage left them bedridden... Read more

Members shared mixed experiences with massage therapy while managing allodynia, with many finding that traditional massage left them bedridden for days despite feeling good during the session, while others discovered relief through gentler alternatives like hot stone treatments, warm mud therapy, float tanks with dead sea salt, and water exercise. Several members emphasized the critical importance of finding a therapist who truly understands fibromyalgia and can provide very light touch or alternative techniques like cupping and dry needling, noting that deep tissue massage should be avoided entirely. A recurring theme was that while light touch from clothing can be unbearable for many with allodynia, some members found that the pressure from massage itself was more tolerable than expected, though the benefit often came at a painful cost that required careful consideration of whether the temporary relief was worth days of recovery.

A MyFibroTeam Member

Hi
I thought a massage was something that would make me feel better -couldn't move for 3 days!
Only hot stone treatment or a treatment like warm mud was helpful. Also, a flotation pool with dead sea salt was wonderful. Having Allodynia is another blow on top of the list of symptoms us Warriors deal with. I have spent thousands of pounds on practitioners, potions, lotions, machines, gadgets, beds, pillows , clothing, footwear and even cars. I'm not cured -just coping better. A Physiotherapist (one of many ) finally taught me some exercises tailored for just me to strengthen my core. This has been very good for me. I hope you find some regime that suits you very soon. Sending hugs.xx

January 31, 2017
A MyFibroTeam Member

I have had massages that helped but you have to find someone who actually understands fibro to work on you, that may be hard to find. It would be worth it if it worked but as with everything it could be painful looking. Hard to say prayers and hugs

January 30, 2017
A MyFibroTeam Member

I cannot do massage either. Feels good at the time, but I can't move for days afterward. Even if they're doing softly.

February 14, 2017
A MyFibroTeam Member

I could not stand for anyone to rub around on me. David tries to help me feel better and offers to rub my back and I can not tolerate anyone touching me.

February 14, 2017
A MyFibroTeam Member

The floats work well but can be very expensive to maintain for long term relief. look on groupon for coupons for the float tanks. I had to stop pt due to the skin pain. Acupuncture helped to end most of it. Very bad flares will make it worse but most of the tiime it is small areas instead of my whole body. Then my doc added OMT

February 1, 2017

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